Autism Spectrum Disorder diagnosis and family service access struggles

From: To: Community Affairs, Committee (SEN); Subject: sub962Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 2:55:57 PM

Please consider this email a formal submission by me to the Senate Standing

Committee on Community Affairs Inquiry into the National Disability Insurance

Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

The disability system has failed my family. I have a child with an Autism Spectrum Disorder and I have had to struggle to find services that could support my child and my family. There is little respite and we are tired. The system is fragmented and any assistance obtained is fought for and expensive. We worry about the long term care of our child. There are many families like ours who find out about services by accident because there is no coordionated approach to care. On finding a service families wait for a specialist because there are so few in rural areas.

The main features of the NDIS that will make a difference to the community are:

Ensure support and equipment is available when needed, Increased ability to coordinate services to suit the “whole” person/family, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

Therapy and allied health services, Equipment and home/vehicle modifications, Support for families and carers

I support the introduction of the NDIS.

The lack of coordination and communication between service providers is a significant barrier to the provision of disability services. A national approach will be beneficial in providing long term care with continuity and ensure best practice in the delivery of services.

I agree for my submission to be made public

Regards,

Mrs Marie Whitrow