From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 4:32:06 PM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
The disability system now does not fill the specific needs of my two disabled children, one now being a young adult. is a 7 year old Down syndrome boy who needs vital speech therapy that stopped when he turned 7 due to the that he did not qualify for the funding anymore, he is just now trying to speak and needs all the help he can get, I also find not having a special school where we live hinders his education, if I had the NDIS funding I could use it to obtain the specific needs for my child as an individual. Having an older child( 17 ) with a disability who fitted into no association who caters for specific disabilities, I struggled to get support and help, one organisation did pick us up but as funding lessen, we were told we would be dropped. No one should have to deal with this sort of situation, the stress and heartache is already to great to bear when you have a child with a disability let alone having this added to your life. We need the NDIS to support each and every child/adult who has a disability as every disability is different and all need individual support.
The main features of the NDIS that will make a difference to the community are:
Ensure support and equipment is available when needed, Better access to education and work opportunities, The ability to receive services when needed and in the way that suits the person
The most important services for the NDIS to provide are:
Equipment and home/vehicle modifications, Education support (technology/services/equipment), Accommodation options, Flexible in home/outside home respite
I support the introduction of the NDIS.
I have cared for my disabled daughter for 17 years and then the last 7 years my 2 disabled children, its not a easy life and not one we would choose. none of us asked for this and yet here we are. I have struggled to give my children the best I can but the cost involved doesn’t make it easy and having to give up work to support them was a added strain, and sometimes they have had to miss out on vital needs to assist them, funding and support is limited. I’ve had ill fitted wheelchairs for my daughter because that was all I could afford, at 16 she got her first fitted wheelchair, something she should of had years ago.The constant cost of equipment, therapy, a good education, nappies and so much more are always there and then there is the personal strain, on all of us. Having the NDIS would take this huge burden away, knowing you have that financial support to obtain all these needs is a security that should never have been an issue from the being.
I agree for my submission to be made public