National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1029
Submission on the NDIS Amendment Bill Name: Jen Hankin I am a: ☐ Disabled person
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My connection to this issue I have been disabled my whole life, but didn’t find out until I was 26 when I was diagnosed with autism level 2, then ADHD then a physical connective tissue disorder which severely limits my physical capabilities. I am now 32. I’ve been an NDIS participant since 2021, and saught support through the NDIS because after years of having unmet support needs and inadequate care I found my life, my body and my employment to be falling apart. Overall, access to the NDIS has saved my life.
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My overall view of this Bill This bill terrifies me. In 2024, my plan was drastically changed by an delegate who had access to drastically out of date information because the NDIA lost all of my paperwork transitioning to a new computer system. The result of this was an 18 month tribunal process, my life falling apart around this tribunal process, and significant re-traumatisation after the trauma of navigating my original NDIS application. The Care and support I received now is the minimum which I require to participate in society. After navigating extensive tribunal processes for something pretty simple, I know that the so-called “NDIS cost Blowout” does not lie with participants. There are efficiencies to be found within the NDIA, particularly within the tribunal process, which would not require a single participant dollar to be touched.
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My main concerns are ☐ Loss or reduction of supports ☐ Crisis situations / “not contactable” rules - I have a communication disability. Sometimes I am unable to be contacted because I have a communication disability. It’s not me being “disobediant”, it’s me being disabled and I should not be penalised for it, particularly by a government program that supports people with disabilities. ☐ Children / families / early intervention - while I do not have children myself, I was once an unsupported undiagnosed autistic child. If I had had access to early intervention, I would be far less disabled than I am now. The result of being unsupported in my childhood is that I now have a significant and lifelong disability. I am yet to see any changes for children in the NDIS to ensure that what happened to me does not happen to the next generation. ☐ Eligibility or assessment changes - it’s not our fault that the government didn’t understand how many disabled people require significant and lifelong support via the NDIS. Instead of punishing us, maybe you should review your numbers because many more people need the NDIS who are currently receiving
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1029
it.
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What I want the committee to understand If these changes go through as they are, this will kill people. Those deaths will be on your hands.
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My position on this Bill Go back to the drawing board, try again. This bill is disgusting.