National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1038
I wish my submission to be anonymous Please do not share my name or identifying details:
Name:
To:
The Senate Standing Committee on Community Affairs
NDIS Inquiry
My main concern about this Bill is:
The decreased flexibility and the decreased choice and control.
The Bill assumes other services are available, but in my experienced there is a complete absence of other services.
My experience:
I have autoimmune disorders and autism that make it dangerous for me to leave the house alone. I am currently applying for the NDIS. and I have received an OT assessment that says I need 30 hours of support. Together with a few other disabled people, I have created an informal support network where we try to help each other access services
I started the application process 6 months ago.I currently have no supports and cannot reliably access food, medications, essentials or medical care without support workers.
This Bill May Affect Us:
I may not be able to access the NDIS with cuts to autism funding, and if cannot acces the NDIS I will no longer be able to live independently and I am at risk of death. My OT has concluded that I cannot live independently without support, and risk of non-provision of services include preventable death. However, one of my disabilities is autism, so I am worried that I may find it harder to access the NDIS. I have other disabilities, but these reforms make it harder to recognise multiple disabilities. Also, I cannot afford to have new assessments for all of them and wait longer for support. This bill also designed to pave the way for automated assessment bills, which will make it harder to identify the needs of people like myself, who have multiple interacting disabilities.
There are no other services to fall back on if the NDIS is cut. I have been looking for other services outside the NDIS for over two years now. I have had support from
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1038
professionals in identifying potential supports because of my high risk. My council services, for example, assessed me as having the highest level of need, but said they had no money to provide services to me unless other people died. I have been trying to
I wish to make this anonymous*
use crowdfunding to raise money for support workers for myself, and for other people in my network. According to my OT I need 30 hours support a week. Crowdfunding has provided a total of 10 hours over 2 years. There simply is not any necessary support outside the NDIS.
It isn’t easy to access what I need on the NDIS now. For the past 6 months, it has taken all my capacity just to work on my NDIS application. I have had to use crowd funding to pay for the assessments I need for my application. I have developed a support network with my friends and I had to use other social services such as housing workers to help me with the NDIS application.
Minorities need to have the flexibility to use smaller, providers: People who are LBGTQIA+ like myself and my disabled friends need to be able to access providers that understand their needs and make them feel safe. Other minorities need thesame thing. By forcing providers to register and reducing self-management, it makes it hard for us to do that, and some of us will not be able to access support at all.
What I want the committee to understand is: I completely oppose this bill and I urge you to reject it. It breaches fundamental human rights. Whilst changes might be necessary to improve the NDIS, those changes can’t breach human rights, and they need to maintain choice and control and reasonable and necessary care.