Concerns regarding cuts to intellectually disabled, autistic brother’s NDIS plan

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1089

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Introduction and Submission Objection

My submission strongly objects to the sweeping cuts and structural alterations

introduced via the National Disability Insurance Scheme Amendment (Securing the

NDIS for Future Generations) Bill 2026 and the accompanying 2026–27 Federal

Budget measures. While the government frames these changes as “securing the

future of the scheme“, they constitute a devastating $37.8 billion contraction that

directly targetsthe independence and safety of myself and all othervulnerable

citizens on the insurance scheme.

By utilising details from my brother’s current NDIS plan, I hope this submission will

provide Parliament with a clear explanation of how these legislative measures will

dismantle the safety of my brother and other individuals with high-complex needs.

My brother has a severe intellectual disability, Level 3 autism spectrum disorder with

a pathological demand avoidance (PDA) profile, moderate anxiety, and

characteristics of PTSD.

Goal for NDIS & Current Plan

Goal – I support that the NDIS needs to be sustainable and last in the long term.

Plan - Currently maintains my brother’s life and security for the next 5 years. It was

built upon comprehensive Functional Capacity Reports and Specialised Disability

Evidence, by practitioners who have worked alongside my family, recording and

submitting his NDIS required documents. His plan highlights the exact supports that

proposed cuts threaten to destroy.

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1089

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

How Changes in this Bill Directly Impact Me

To remove my brother from this insurance scheme, or to strip away his carefully

structured funding and specialised behavioural supports, will not create

“sustainability”, it will trigger immediate regression, severe behavioural escalation,

family breakdown and an inevitable, far more costly transition into crisis-based state

care.

This Bill, if passed, will introduce structural changes that fundamentally undermine

my brother’s safety, stability, independence and our family’s long-term security.

These proposed reforms are not theoretical to us; they will have direct and deeply

personal consequences for our daily lives, wellbeing and capacity to continue

providing care and support.

My brother, our family and myself are particularly concerned about the following

proposed changes:

●​ The threat of exclusion from foundational supports.​

●​ The proposed 50% reduction to social and community participation funding.​

●​ Reductions to essential 24/7 1:1 support services.​

●​ The redefining of parental responsibility and informal care expectations.​

●​ The proposed 10% cut to Capacity Building – Daily Activities funding.​

●​ The removal of diagnosis-based access criteria in favour of standardised

assessments.

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1089

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

The danger of removing or significantly reducing these supports cannot be

understated. My brother’s current funding structure exists because his needs are

complex, permanent and extensively assessed by professionals. These supports are

not “extras” or conveniences, they are preventative measures that keep him safe,

regulated, connected to the community and out of crisis.

Without access to consistent behavioural intervention and specialised support

workers, there is a very real risk of rapid regression in his emotional regulation,

communication, independence and overall functioning. For individuals with high and

complex support needs, sudden disruption to routine, staffing, therapeutic supports

and community access can lead to severe distress, heightened behaviours of

concern, social withdrawal and loss of essential life skills.

The reduction or removal of 24/7 1:1 supports would place an unsustainable and

unsafe burden back onto our family. Families are already operating under enormous

emotional, physical and financial pressure. Expecting parents and or siblings to

absorb the responsibilities of highly trained disability support professionals is not only

unrealistic, it is dangerous. It places carers at significant risk of burnout, mental

health decline, financial instability, relationship breakdown and complete exhaustion.

If these proposed changes force families beyond their limits, the likely outcome is not

“reduced spending”, it is crisis escalation. Individuals who lose early intervention,

behavioural support and community-based care often end up requiring emergency

services, hospital admissions, mental health intervention, police involvement, or

long-term state-run accommodation and institutional care. These outcomes are not

only traumatic for the individual and their family, but substantially more expensive for

the government in the long term.

The proposed shift away from diagnosis-based understanding toward standardised

assessments is also deeply concerning. Many disabilities, particularly autism and

psychosocial disabilities, do not present consistently in short assessments or rigid

functional testing environments. Reducing a person’s entire lived experience to a

standardised assessment risks excluding vulnerable people who have spent years

building critical support systems that are currently working.

pg. 4

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1089

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

For families like ours, these reforms create ongoing fear and uncertainty about the

future. We are being asked to justify support that has already proven essential to

maintaining safety, dignity and stability. The removal of these supports would not

increase independence, it would dismantle the very foundation that allows

independence to exist in the first place.

Conclusion

I strongly believe that ‘The Securing the NDIS for Future Generations Bill 2026’ is a

fiscally driven attack on the lives of young disabled adults.

A Government cannot responsibly extract $37.8 billion from a scheme that handles

critical human infrastructure before an equivalent, fully operational and accessible

state-based system is built. The devil is in YOUR details and currently, those details

threaten to trap a generation of young disabled Australians in their homes, isolated,

unsupported and causing families to break down.

For these reasons, I urge the Committee to make the following recommendations to

Parliament:

▪​ Withdraw the Bill.

▪​ If not withdrawn, extend the Senate Committee process.

▪​ Conduct an impact-driven Human Rights Review.

▪​ Release all modelling re: Access, Funding, System Changes Impacts,

Workforce Impacts,

▪​ Remove or restrict Determination Powers.

▪​ Do not Cut Social and Community Participation Budgets.

▪​ When considering eligibility or change, do not do so using automated

decision-making systems; retain a holistic individual support requirement

approach.

▪​ Preserve the current plan end dates, lifelong disability cover and

reassessment rights.

▪​ Remove suspension or revocation provisions.

▪​ Do not commence access changes until replacement supports are evaluated

and functional.

pg. 5

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1089

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

▪​ Release information re: cost shifts from federal to state/territories.

▪​ Protect Self-Management and the choice of trusted personal care

employment arrangements.

▪​ Do not reduce Participant Choice and Control.

▪​ Ensure further/future Consultation involves independent Disability Community

Advocacy regarding any changes and reforms.

Respectfully submitted by,

(NDIS participant’s family support, May 2026)

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