Concerns regarding access to core supports and support coordination (Family or carer experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1150

Submission to the Senate Inquiry on the Proposed NDIS Bill 2026

I am a full-time carer supporting my brother, , who is an NDIS participant. Over decades, I have provided daily care and advocacy for family members with disability, and I have direct experience with the NDIS planning and review processes.

Impact of the NDIS on our lives

The NDIS provides essential funding that allows to access daily living supports, transport, therapy, and community participation. This funding enables him to live more independently and participate meaningfully in community life. As a carer, the NDIS also gives me structured support and guidance, which is crucial for ensuring his safety and wellbeing.

Supports that matter most

  • Core supports, including transport and daily living assistance
  • Community participation programs that enhance social engagement and skill development
  • Therapy supports, including occupational therapy and speech therapy
  • Support coordination to navigate the NDIS system and connect with services

Concerns with the proposed changes

Any changes that reduce access to core supports, limit flexibility in using funding, or increase administrative complexity risk undermining the independence and quality of life of participants. Removing or restricting support coordination, or applying rigid rules about what can be funded, would duplicate difficulties that carers already face in managing complex care needs.

Recommendations

  • Maintain flexible access to supports based on individual need rather than blanket restrictions
  • Recognize the role of carers and support coordination in facilitating meaningful outcomes
  • Ensure planning and review processes are transparent, timely, and grounded in participant evidence
  • Provide clear guidance on what supports are reasonable and necessary without adding bureaucratic hurdles

The proposed NDIS Bill has the potential to improve the system, but it must continue to centre the needs of participants and carers. Any legislation that limits flexibility or access to support risks harming the very people it is intended to assist.

I urge Senators to consider the lived experiences of people with disability and their carers in shaping this Bill.