National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1165
The National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026.
In regards to this amendment, I would imagine you’re going to find a lot of heartfelt, humanistic and deeply personal submissions.
I would like you to at least acknowledge research into particular disabilities such as Autism has vastly expanded since the conception of the NDIS.
There is evidence autistic burnout can be prevented in children and would protect them from the same physical and psychological issues facing late diagnosed Autistic adults currently.
It appears members of parliament are happy to listen to outmoded and outdated definitions of what it’s like to be an Autistic person. It then makes it easier for you to make ableist decisions that help you carry on regardless while a significant cohort of the population gets relegated to the fringe where you like to keep them.
I applied for the NDIS recently and the agency has since received a substantial amount of evidence from myself and my support workers pertaining to my personal problems as an autistic adult. We sit within a variety of mental health buckets as a consequence of otherwise preventable affects on young, developing autistic brains, many of them psychosocial illnesses that require huge amounts of medical intervention, unlike autism itself, which is not a treatable illness. It is a lifelong disability.
Please see the following article below:
https://pmc.ncbi.nlm.nih.gov/articles/PMC9732262/
There is strong evidence provided here that early childhood stress has a drastic effect on developing neurodiverse brains and can contribute to comorbidities such as psychosis, major depressive disorder, eating disorders and substance abuse disorders. A variety of issues prevented me from getting reasonable help as I grew up, and now I am in my mid forties, unable to work because of severe autistic burnout. The impact on what you call “mild and moderate” autistic children can only become severe if you completely disregard the supports they need to function in society right now.
The autistic child you remove supports from today could and likely will become the struggling adult who will be dependent on judicial systems and medical institutions to simply cope with an ever-formidable, ableist society. By helping children now avoid Early Childhood Stress and be supported appropriately (not by ABA) you will likely prevent them becoming an adult like myself with reactive psychosis and severe autistic burnout who can no longer work.
I want to contribute to society. I chose to go on the NDIS because I want very minor, easily deliverable supports within the workplace, supports that do not cost an employer or the NDIS nearly half as much as I likely cost the government from repeated involuntary admissions to public psychiatric hospitals. Facilities that contributed to my medical trauma and further made my recovery more and more difficult to achieve and maintain. Especially since I now know they are completely unsuitable environments for any autistic person.
The investment they’re requiring now will have positive long term outcomes for them, their families and the wider community. They are not the drain on society you seem to think they are.
I told many people to vote Labor before the election as I was incredibly concerned about the scheme’s future, and I am appalled and disillusioned with your current policies, not just with the NDIS but with the blatant disregard for the future of Australian autistic children. You have an opportunity to restore faith in your party but apparently submarines and gas are more of a priority than children.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1165
Please reconsider your stance before you move ahead with this bill. I am too tired to work and it’s taken me days to even sit at a computer to put my thoughts into words. I don’t want autistic kids to have to pointlessly suffer the same problems I did growing up.