National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1207
NDIS Amendment (Securing the NDIS for future generations) Bill 2026
27 May 2026
My adult child is on the NDIS through their autism diagnosis. I know the government has been very secretive about who these cuts will impact, but the consensus in the community is that it will predominately impact people with autism. This has caused a huge amount of stress for me. I have had my own health issues, and although I have always been my child’s carer, my health means I may not be able to do as much in the future as I had hoped. Having my child on the NDIS has always made me feel safe that if this should happen, they would have the support they needed if/when I stopped being able to provide it myself. Now in my later years when my age and health require I should be lowering my commitments; this will most likely lead to an increase instead. Not only has the government stigmatised vulnerable people with disabilities by this move, but they have also placed undue duress on aging parents and families. I don’t have any other family members that can take on the care responsibilities, so this leaves me with angst on what will happen when I am no longer able to do the caring or am no longer around. Prior to this, in a world with many stressors, this was not one I had to worry about.
Obviously, my child has been impacted by this too and their anxiety has increased by this uncertainty. They have had a huge increase in panic attacks and been robbed of hope for their future. They will do their own submission, so I won’t spend much of this letter about them. I did want to give one example. The other day I was waiting on test results which worst case scenario could have been a cancer diagnosis. When we got the all clear, my child burst into tears. Of course, they love me and don’t want me to die, but at the back of their mind there is also a huge fear of how they will live without my support as NDIS is now not guaranteed.
The NDIS system is a very complex system, and I would say it’s not very user friendly and my child has had difficulties navigating the system and linking in with the supports they’ve needed. At one time we even had to take a matter to the tribunal as services they should have been entitled to, were refused. At the last minute the service was approved. But it is concerning that the government is now also talking of cutting down NDIS staff funding, which will mean there will be less means to fight a complex system and certainly not enough staff to even try and make it a smoother system.
But over the years, the biggest problems we have had were with services who over charged, continue to charge for services cancelled and fool people into services they do not need or use. My child moved States and tried to link in services on their own, only to then find out the service
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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1207
was charging management fees that they were not providing. They tried to link in with other services, and no one would turn up, like I said it’s not a good system to navigate. In the end I had to move States myself so I could support them and we are currently still trying to link in services that will meet the desired needs. Most services just want to fob you off with a housecleaner, which is not what everyone needs. I have heard the government talk about services rorting the system, yet there appears to be no oversight on how this will be monitored. Nothing implemented to protect service users, and highly unlikely to be monitored properly if there are NDIS staff cuts.
Of late I am feeling very deflate in our government as the true colours are becoming so obvious it’s hard not to see it for what it is; a greedy bunch of outdated, predominantly male, mainly white, older people who are completely out of touch with what most Australians need. Mainly because they’re too busy spending time being bribed by big business and lobby groups also being bribed by big business. Using the vulnerable in society to keep the rich propped up in their lavish, profit riddled lifestyles. Nothing is being done to house our homeless, those small figures that is going into affordable housing doesn’t even cover 10% of homeless people. They brag that they’ve lowered the capital gains tax, which really plays a huge part in how we came to this housing affordability issue in the first place and should have been abolished years ago. But more than 50% of Australians cannot afford to buy a house, so you’ve done nothing. But even still those already wealthy landowners get grandfathered. How about grandfathering those already on the NDIS instead of taking that away? And did you know that a high percentage of homeless people have autism, all these things are interwoven and you’re blind (or basically don’t care) to the future stresses you are creating. The government refuses to tax big business and billionaires which could help cover NDIS, affordable housing, free education, renewable energy and so much more. But no, we’ll just rob from people with disabilities, don’t know how you sleep at night.
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