Opposes NDIS reforms impacting autistic nephew's support worker funding (Family or carer experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1220

To Whom It May Concern,

I wish to formally express my opposition to the proposed changes contained within the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026.

While I support the need for accountability, sustainability and fraud prevention within the NDIS, I do not support reforms that may reduce access to essential supports, create additional barriers for participants, weaken review and appeal rights, or shift the scheme away from its original purpose of providing reasonable and necessary support to Australians living with disability.

I am exceptionally concerned about my teenage nephew who has recently had his funding drastically cut. His carer (kinship foster) is a single mother with three boys, two of whom are autistic. My nephew is a teen but on recent assessments has been identified to have the same speech scores as a three year old. However (despite ongoing progress) his funding has been cut to only allow him one therapy session a month. This means my sister in law has to spread out his OT and speech etc sessions to being only a few a year. This is going to drastically impact the progress that he has been making. In addition, he has lost all support worker funding which means he is no longer receiving the modelling and mentoring on his goals including life skills and community inclusion. (Whilst she does an amazing job in the house, my sister in law is unable to do the one-to-one teaching that he requires in public due to her other autistic son.) The removal of a support worker is going to result in my nephew not having regular opportunities to learn essential skills from a trained support worker that he will need as an adult.

The NDIS was established to provide dignity, independence and equitable participation for people living with disability. Any reforms must be developed transparently, in genuine consultation with participants, carers, families, providers and advocacy groups.

I urge the Government and the Senate Committee to reconsider these proposed changes, undertake broader consultation, and ensure that no participant is disadvantaged by reforms introduced in the name of sustainability.

The NDIS must remain participant-focused, fair, transparent and accessible for current and future generations.