National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1404
I write to express my concerns about the changes to the NDIS.
I have a range of concerns.
The NDIS has been life changing for my daughter (Down Syndrome). Prior to the NDIS she was enrolled at and then at After a total of 11 years my daughter had the exact same capacity that she had when she flrst enrolled at age 8!
As a result of the NDIS, slowly but purposely began to build capacity and I am so proud that she is now working 5 days a week at CAPE where she is using all the skills she has accumulated over her NDIS experience. In short, is a massive success story and one the government should be proud of.
As a result of the NDIS, is no longer isolated and depressed sitting at home. She is a happy, well-connected, engaged young person. As a result of the NDIS I finally dared believe that she would be fine when the time comes for me to leave this earth.
But the proposed changes have put all that at in jeopardy and I for one cannot understand why the messaging has been so “one net catches all”. The recent budget and commentary is causing unnecessary high levels of angst to the point of negligence. Living with disability is hard enough without having this new unnecessary high level angst.
For , reducing the supports that have set her up to succeed can only be described as utterly cruel. It has taken 32 years to get all her supports in place and now there is this risk of dismantling all the things that have brought her to where she is now! I just don’t understand why the NDIS would dismantle a success story.
My daughter still experiences access barriers on a daily basis but with the expertise of her support coordinator she manages her best life, flnding the balance between support and independence. Her mental health is significantly better, she enjoys her visits into the community (and I have been advised by her support workers that members of the community enjoy engaging with my daughter just as much). Surely this is what the NDIS was set up to achieve.
I feel these changes have not been explained clearly enough. Indeed I feel that the messaging has caused unnecessary angst and distress.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1404
I don’t actually know how we can handle the changes because how does one recover from life as now knows it to one without the current supports? To me that is absolutely cruel. I do understand that there are people on the NDIS who should not be but surely the government could do a better job of narrowing in on the specific people this is aimed at with reassurances to those who the government is not targeting.
I am petrified that at my age I am going to have to go back to the bad all days where I have to be my daughter’s main support worker. I am the mother of 3 children and 4 grandchildren. I am not expected to support my other children and grandchildren and I should not be expected to support , particularly at my senior age.
I am a single mother with not only but a son who has significant mental health challenges after a distressing marriage break up. I already feel so stretched being everything to everyone so to now have to contemplate the possibility of extra responsibility to my adult I personally feel lost and hopeless and the government needs to know this.
I plead with those in power consider what it is like to walk in the shoes of me as a mother and reconsider the messaging of the cuts and the impact decisions will have on my daughter . Understandably I want her to remain an NDIS success story and not an NDIS casualty.