National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1415

To whom it may concern,

I am an occupational therapist working in a paediatric clinic and a small business owner providing services to children with disability and their families. I am also the parent of an adult daughter with major disability who is an NDIS participant.

My concerns are not abstract: In my daughter’s case significant intellectual impairment confirmed by WISC assessment and physical impairment both previously accepted diagnosed her paediaician when she was child were effectively removed disregarded decision-making without consultation warning past week She ASD level yet despite clear evidence including OT report applied Supported Independent Living SIL existing supports suddenly reduced make ineligible SIL informed reports provided five six years assessor considered could live independently little support no evidence justified battle restore supports secured help work living out home safely appropriate support Many do background resilience engage these sorts battles second time This reflects broader deeply troubling pattern Detailed OT reports value if decision-makers lack knowledge interpret functional evidence instead rely assumptions inconsistent disability development real-world needs Paediatric practice seen similar comments made families suggestions young Down syndrome severe physical recovery though lifelong disability its functional impact temporary self-resolving decisions clinically unsound harmful dismissive destabilising families this Bill especially concerning context because would increase reliance standardised,

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1415

I am also deeply concerned about the proposed reductions from October 1st [year not specified], including a [specific year] cut in capacity building daily activity supports along with an additional reduction of social/civic/community participation supports. These cuts significantly impact independence-building activities like sustaining routines or enabling school community engagement while increasing pressure on families and carers who have already struggled justifying their needs despite increased reasonable levels before these further decreases were implemented.

Submission 1415