NDIA Accountability Project

This project is in DRAFT

Concerns regarding NDIS changes impacting family’s capacity to care (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1456

Submission to the Parliamentary Inquiry into Changes to the NDIS, May 28th, 2026

Author: redacted Location: Hobart, Tasmania Role: Parent, Carer, Teacher Children:

  • Three children aged 12,
  • Nine years old.
  • Six-year-old all participants in NDIS.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1456

The NDIS was founded on principles of choice and control. These changes undermine those principles and place vulnerable children into systems that may not be suitable for them. I am scared because any reduction in social or community-based supports would have devastating consequences for my children.My eldest child requires 1:1 supervision to safely leave the home and engage with the community.Without this support:

  • He will become isolated at home
  • He will lose opportunities for meaningful social interaction
  • His skills will regressHe loves people.He wants to engage.But without appropriate support.he will be confined to ourhome.watching Peppa Pig and The Wiggles.on repeat.becoming further disconnected fromtheoutside world.This.is.not.humane.I.am.scared.because.the.reduction.in.capacity-building.supports.will.have.long-term.consequencesnot.only.for.my.children.but.also.for.the.system.as.a.whole.can learn—but slowly, and only.with consistent.targeted.support.Skills.such as toileting,bathing,and.personal.care.require ongoing development.Without continued support:- He will lose skills-His independence will decrease-Future care needs will increase significantlyThis.result.in.greater.long-term.coststo.the.NDIs,.including.funding.for.continence.products.andhigh-level personal care.For my younger children.loosing access.to.1:1.coachingand therapeutic.supportswill.directly impacttheir ability.todevelop.social.skills.regulate.emotions..participate.meaningfully.inschool-andcommunity life.We have established strong.effective.support.teamsfor.each.child.These supports are working.Removing or replacing them.risks undoing years of progress.As a teacher.i am scared.My colleagues and I.are already burning out.or leaving the profession-orreducing.working.hours.Currently.there.minimal.allied.health.provisionsinschools.this wouldleave .theworkload on teachers.Changes in the budget to.current NCCD.moderation arealreadygoingto be.absorbed.byteachers withinthebudget submission.howaresupposedtomanage this too?At.end.oftheday.it is our students who.will again miss.out.In.addition.if theparliament.is looking outsideoftheschool.context at.broader Hobart community.toprovideallied health.services,in it’s current iteration.then public sector.could not absorb thesupports currently delivered through then NDIS.This.issueis even more severe insregional and remote areas.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1456

The idea that mainstream systems can replace NDIS-funded supports is simply not grounded in reality. The infrastructure does not exist. People do not exist. Transport to these locations does not exist. Thriving Kids will take away support before a plan has even been proposed as how these supports will work. Without significant investment development, these changes will leave children without access critical serivces. I am just writing another number, I beg reconsider these changes or at least seek real consultation from people who are carers disabled, ad hoc week submission period after proposal.I exhausted frightened heartbroken.Every night go bed wondering continue care under increasingly broken system.The most painful truth I can share this: At lowest point found myself wishing son pass because cannot see future where he safe supported cared for me.No parent should ever feel way.This happens when designed vulnerable Australians instead creates fear instability exhaustion.Key RecommendationsProvide clear stable transparent guidance on all NDIS changes implementationPreserve true choice control including access non-registered providersMaintain funding individualised supports particularly complex needsProtect and expand capacity-building Invest allied health services shifting responsibility mainstream systemsDo change permanence defined act ableist harmful use semantics.Recognise address growing crisis of carer burnoutThank you considering my submission opportunity share lived reality families mine.Regards