Medically induced PTSD and inaccessible treatments (Participant experience)

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Submission 1516

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1516

recommendations into violence, abuse, neglect and exploitation of people with a disability“ What she didn’t say was: In the final report of the Royal Commission Inquiry, into Disability Discrimination there are two hundred twenty-two recommendations made. including a Disability Rights Act Our Government agreed to consider all Recommendations.I know areas like law policy housing employment education are already in need revision change according royal Commissions’ recommendation.What don’t know whether Minister Mark Butler for NDIs himself held accountable or will be held accountable his department’s abuse power exploitiation neglect disability.Know end day institution intent individuals represent integrity morals ethics decision making power those deficient moral compass leaving question their integrity ethic.In opinion this bill definitive proof moral deficit exists.Bill current legislation procedure guidelines embodiment retarded for those disabilities it delay hold back who needy participants suffer hands others either power representative powers that be.We community not given enough time properly understand repercussions these amendments have explained clearly concisely easy read version politically legally educated.Understand phrase “all available treatments before being considered eligible” though disgusted written law! Could justified hypothetically speaking treatment Boston Children Hospital America haven tried yet you’re ineligible.May sound ridiculous but amendment could interpreted as.There nothing about reasonable access affordability many cases Australia isn’t reasonable access affordabilty everything required covered by medicare bulk billing even then see specialist take months years rural setting can travel cities appropriate treatment diagnosis care real struggle.may only recognised NDIS having Spinal Cord Injury PTSD however numerous medical conditions rule out candidate currently available accessible here Australia example refractory (uncontrolled hard manage) epilepsy steroid hypersensitivity triggers seizures hypnotherapy seizures light therapy seizures opioid allergy ketamine program unsuitable candidate medications interact with seizure medication list goes on and keep up to date new trial procedures don’t want live way do may medically induced PTSD took long NDIs concept control myself able comply doctors psychologists psychiatrists attest traumatic distressing go G.P. think sincerely legitimately need support someone needs remember Dr said brain shut down protect itself.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1516

The word permanence I can’t help but find amusing since without laughter or jokes about it, crying might occur—possibly leading to some form of mental breakdown. It’s awesome just imagining freezing time with conditions degenerative fluctuating; you never really understand what lies ahead! The role NDIS plays significantly slows down impact working around these conditions enhancing quality life once upon driving myself children safely until surgery rehabilitation steroid injection went wrong no longer safe nor capable behind wheel assumed seizures stop me from doing so yes they do but came along after transient ischemic attack mini stroke aneurysm found repaired though not cured my says won’t go away permanent despite everything tried yet currently doesn’t recognize internationally renowned Specialist Neurologist Epileptologist face epilepsy Australia top field disability update seizures their “permanence” administrator lawyer politician determine it arrogance someone desk hasn’t experienced through seen those love have seen qualified comparable man treating six years now Seriously who idea? Legal genius sarcasm thought good Legislative Act fails participants undisputable medical facts produce administrative personnel reject only NDIA spend thousands ultimately millions ART because participants fight need and aren’t using legal aid finding paying top Administrative Lawyers teams wonder money saved if disabilities treated human beings number system criteria determined medically unqualified administrator disingenuously insouciant manner If capacity building support provided date guaranteed would be able spending grandchildren witnessed football played godson daughter son daughter in-law consistently basis taken point can stay full game should Bill pass Under current criteria guidelines am before A.R.T. requesting annual funding rather than quarterly run out first two quarters exigent circumstances fearing social access community overnight support written into plan needing written managers pay invoices fear repercussions rejection paid fall any sort seizure exacerbates overextenuates spinal cord injury NDIS wants neat tidy little box “would that be, two or three times a week?” answer NO randomly needed don’t know when going to take fall My risk increased by your rejecting power assist manual wheelchair

Submission 1516