National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1530

Senate Community Affairs Committee Submission

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Prepared by: redacted Location: redacted , Victoria Status: Opposed to new NDIS Bill My name is redacted, I am a 40 year old mother of two children, both who are supported by the current NDIS. My daughter, who is 8 years old, has been supported from the age of 2 and just this year moved from Early Intervention to Permanent Disability on the NDIS. My son, who is 3 years old, is currently on the Early Intervention. Both children struggle with autism, ADHD and significant daily impacts from other co-occurring conditions. I am unable to work due to also being the children’s full-time carer. The NDIS fills in some gaps of financial support that my family needs in order to access therapies, which help my children communicate, participate and otherwise thrive in environments and situations they cannot without such assistance. But our children do not receive all required supports—such as specific aids needed for bowel issues or items necessary to manage chronic pain—and like many families facing similar challenges, we go without until additional funds can be found through overtime hours worked by me while already working long weeks at home caring solely because there isn’t enough money available elsewhere within existing resources provided under these circumstances alone. As someone trained professionally across healthcare fields over several decades now dedicated entirely towards caregiving responsibilities since becoming parent myself; despite having transitioned naturally into role where I’ve always excelled previously, it remains clear how much toll it takes upon both physical health & emotional wellbeing alike especially when considering overall impact experienced throughout entire day/night cycle rather than merely reflected via reports submitted periodically during assessments conducted either independently by practitioners themselves OR those carried out directly alongside National Disability Insurance Scheme (NDIS) evaluators; such intense pressures manifest mentally physically AND financially too often leading even further down path requiring postponement critical medical procedures along with neglecting own personal well-being altogether due lack sufficient care provisions offered specifically designed cater precisely meet unique individualized requirements associated each child’s particular condition(s). The changes proposed herein regarding assessment criteria applied particularly concerning invisible fluctuating psychosocial disabilities including autism spectrum disorder present significant concerns given complexity inherent nature of behavioral sensory needs involved which simply cannot fit neatly within simplistic functional evaluations currently employed thereby posing serious risk removing children from scheme completely or worse leaving them unable receive necessary support required for their continued development and growth in future years ahead.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1530

This is also the concern when considering the Bill will grant unprecedented discretionary powers to the Minister through legislative rules rather than primary legislation. What this means is we may lose some or all of our support without there being anything takes its place. There is currently zero community welfare or support options for my children or myself All exceed funding April long waitlists offer in region meaning no-one can supports assessors minister decides children’s supports sustainable scheme futureHow then secure thriving future Children Myself? The discussions moving shift responsibilities back Families Carers unpaid labour increase pressures family impact negatively already so exhausted energy every point case affect us these main points like make now belief if time given inquiry actual discussion taken with disability sections families Bill response longer concise In summary Cannot Support This Bill Should Not Passed Through Parliament Believe It Will Cause Harm Participants Their Families Sincerely, redacted