NDIA Accountability Project

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Endorsement of Parkinson's Australia’s criteria regarding early support and assessment for people with Parkinson's (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1549 - Supplementary Submission

Gabriella Mirabito

Committee Secretary, Senate Standing Committees on Community Affairs PO Box 6100 Parliament House, Canberra ACT 2600 Date: May 27th, 2026 Dear Committee Secretary: Re: Submission to the Senate Community Affairs Legislation Committee NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026. My name is Gabriella Mirabito; as a carer and family member caring for someone with young-onset Parkinson’s disease who participates in the NDIS under age sixty-five years old, my submission endorses key criteria from Parkinson’s Australia based upon our personal experience living through an incurable chronic progressive neurological condition that impacts daily life safety independence therapy access participation engagement at work community life etc., The individual we support requires early intervention pathways not removed due progression of symptoms which increases risk cost; as conditions change throughout day assessments must reflect this one short assessment cannot capture how PD affects them; evaluators need comprehensive knowledge about movement non-motor effects medication timing “on-off” periods symptom fluctuations; symptoms experienced by those supported should be fully accounted within system.

  • motor and non-motor symptoms
  • cognitive changes
  • fatigue, depression, apathy and anxiety The function of the person you care about varies throughout their day; functional capacity needs regular evaluation:
  • different times during each day,
  • across medication cycles. The risk factors associated with falls depend heavily upon where that individual lives—assessments need include more than just clinical settings in your loved one’s environment.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1549 - Supplementary Submission

  • full care load
  • carer impacts, including reduced financial situation, fatigue, burnout
  • long-term viability The budget must match the real cost of supports.
  • If the budget is too low, the person I care for must have a clear right to challenge it.
  • Funding rules must not allow plans that cannot meet the needs of the person care for.

Decisions and pricing Any changes to supports must:

  • notify the participant or their representative directly
  • explain the impact on the person affected
  • allow a right of appeal Pricing decisions must: stay open to parliamentary review be informed by clinical experts in neurological conditions Parkinson’s is complex, progressive, and variable. The system must reflect this in how it assesses, funds, and supports the person I care for. Thesechanges will protect their safety, independence, and long-term outcomes.Thank you for considering my endorsement.I hope it contributes to the committee’sunderstandingoftherealitiesoflivingwiththeseissuesandsupportsthedevelopmentofofmeaningful anda practical reforms foraustrians with incurablechronicneurologicalconditionsonthenDIS.Dont hesitatetogetintouchwitheimif further informationis required.Yours sincerely,Gabriella MirabitoConsent StatementIConsentothisletter/submissionbeingpublishedmycontactdetails withheldanndynnameincluded.