National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1584
Senate Submission - NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026
About Our Family:
My name is [redacted] and together with my husband ([redacted]) we are parents/primary caregivers of [redacted], who is 31 years old and has significant permanent brain damage he was born with. [Redacted]’ challenges include severe intellectual impairment, cerebral palsy, a vision impairment, no speech, total incontinence, uncontrolled epilepsy (4-6 major seizures per day). [Redacted] requires wheelchair use while attending their day programmes.[ ][ ] [Redacted]’ current NDIS plan ( his sixth plan since joining as an participant from 2018), funds his attendance at supported day programme four days weekly one-to-one support “7 hours daily” plus allied health services OT/Speech Physio). Also accesses STA outside home also supports worker hours to provide care within. We have successfully self-managed [redacted]’s plans.The NDIS had significantly impacted on [redacted] living best life under NDIS funding support.
Why I Am Concerned about This Bill: The proposed cut social community participation funding -the day program not optional For [redacted] living alone the day program leisure activity where develops skills maintains connections lives independently family home My husband wife along side allied professionals workers prepare discuss [redacted]’ involvement programs relevant positive specific needs babysitting we ensure this Proposed reduction of half social community participation funding which is how day program funded would directly reduce number attendances hours [redacted] can require ratio staff cannot lower level staffing care needs unchanged If funding for day programme attendance reduced will be with myself and my husband additional two three times per week potentially five six days per week gets bored at home increasing challenging behaviors do our best stimulate make enjoyable relevant struggle providing stimulation skill development safe engagement that provided by
Parental Responsibility Assumptions:
My husband are primary full-time caregivers both in mid-late 60s.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1584
The level of care we provide is substantial, skilled and ongoing (24/7). The Bill proposes to embed an assumption that parents will continue to provide ‘substantial care’ without any consideration of our age, health, capacity or the sustainability of our caring role. As my husband and I both age (and have age-related health issues), reducing redacted’s funded support is not a saving; it creates future crisis.