National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16 Hello, I am this is “am”, living in the Ararat rural city area and a ndis participant. I am contacting you to at least to request an in person meeting to be able to get some help to be able to get “sill” funding for me to move out of home. Or actually to get help to ensure we get the funding quickly instead of 12 months or 6 months. The ot and my support coordinator have already sent my report for the funding amd the 2 letters attached to this email, I’m just contacting you to give some extra push to make sure the funding comes quickly and the expensive housing prices for units. My situation is pretty bad, my mum is on the brink of a breakdown, because of how ndis dose nothing but destroy our mental health with all the hoops we have to jump through and so many of those should be scraped for the sake of participants and their families mental health, someone could commit suicide,
ever thought of that? Absolutely NOT! Also it’s done some damage on my own mental health with the
stress YOU put on my mental health in regards to all the crap and making us wait for to long, YOU have no clue what urgent means? Don’t you? I even have to go to counseling (the counselor thinks that even writing letters won’t make it happen quickly) because of YOU the awful system that ndis REALLY IS! So I would also request that a report and study be made in how much damage the ndis actually dose to the disbaled communities mental health instead of actually helping and how many have taken their own life because of the system, due to a clueless non disabled person as the minster. MAKE THIS RECORD PUBLIC!! Where was the backlash from the disabled community when amanda rishworth was became the ndis minster, instead of a disabled person like jordan steele? I have more info on this in the letters I have sent to you in a email. BE WARNED THAT I
Submission 16WILL WRITE ANOTHER LETTER IF WE HAVE NOT GOT THE SILL FUNDING IN A
MONTH!! The other issue that is preventing this from moving along quickly, is the prices of 2 bathroom/2 bedroom units in the Ararat area, they are overpriced with a tag of 400k, that is a price you would expect from an actual house, but a unit? Holy crap! How much longer until these prices go down? My parents don’t want to do a guarantor, probably worried about going broke. We were talking to one real estate agent, but haven’t heard anything from them, so I have requested that my dad ring another real estate agent since we haven’t heard anything. But we are going away next week so dad said that the call will have to wait until we get back. My mum thinks there is nothing you can do, when I think there is. Why is mum not writing letters to the minster? Patience is NOT a virtue in my situation, AM
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16 Hello this is am again, I am writing this letter that has come with my other report to get my sil (supported independent living) funding, to let you know that as a disabled person, I am VERY, VERY disappointed that another non disabled person has been “chosen” to be the new nids minster. Why do non disabled people keep on getting elected as the ndis minster?? It’s so damm obvious they have no idea what they are doing, as many past politicians have only lasted 2 or 3 years in the role. The supposed rumor of labor being voted out and a new ndis minister when election comes around, is only going to cuase more stress, mental health issues and potential suicide - ESPECIALLY WITH A RIGHTWING POLITICIAN LIKE PETER DUTTON! But really, all politicians are conservatives pretending to be left, except for Jordan Steele maybe. Jordan Steele is the only one who is fit to the be
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 the ndis minster, until they get more disabled people in parliament that
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16
is. Also I am including a article I wrote in one of my local papers on how employment is difficult for disabled people, because there is no rule in the current discrimination laws that make it compulsory for open employers to adopt and accommodate. I got told yesterday that des services already have something to try and encourage open employers to accommodate for disabled people, but it would be a lot better if this was a law for all open employers - more in the newspaper article I sent. Also I am writing this to you to let you know that if my supported independent living funding is NOT APPROVED IN A MONTH, I will be writing another letter. Mum thinks it will take 12 months still and we’re just in January, NOT ACCEPTABLE PEOPLE! As I have written in my other letters, mum is on the verge of a mental breakdown. YOU HAVE BEEN WARNED! I don’t know what else to
write, as anything else will be me
repeating myself what I have already
written in
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16
other letters. AM I would also like to note, but why the use of old outdated “ableist” language have to be used for ot reports when most of the disabled community dislike functioning labels? Like in my own other report, there are things that show that functioning labels don’t really work, due to the fact in the picture below, it says I can be left alone for a few hours, but then says “low functioning”?!?
Emotional supports
Other (specify):GROUP D subtotal GROUP A+ GROUP B + GROUP C + GROUP D = 18/28
Ms Milne scored a total of 18/28 on the Care and Needs Scale and was assessed to be atCANS level 5 which means she can be left alone for a few hours - needs support ~23
hours per day.
This is consistent with the findings in WHODAS andmoderate impairment, low functioning, and would need assistance and supervision. This is consistent with her difficulty sustaining attention, difficulties in comprehension, reduced decision-making, poor planning and organising, struggles in problem solving, and safety awareness, associated with autism spectrum disorder.
Submission 16Then there are other inconsistencies like some
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16
saying I need 9 hours of care and some like the image above saying I need 20 to 23 hours. The image below gives an idea of how autistic people can “fluctuate” between “low” functioning and “high” functioning, therefore meaning there is no such thing
- hypersensitive to
textures/sensory
stimuli person A person B
- may only have one
- nonverbal . . special interest or - a1ways st1mming . . none at all - makes way too
- avoids eye tn pubhc much eye contact - pretends to
contact understand social
cues/may force
facial expressions - may be VERY
- "visibly autistic" - has a lot of special verbal interests/
- meltdowns via hyperfixations
their autism in - may be seen as
front of peopleAutism Spectrum
The Autism spectrum is not linear.
less autistic
very autistic
The Autism Spectrum looks more like:
- Social skills
- fixations
- routines
- Sensory issues
- stimming
- perception
- executive func.
- other
→ Terms like “high functioning” and “low functioning” are harmful and are not used anymore.
Autism - Sketches
Submission 16
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 The there were changes made to the autism diagnosis in 2013 and the ndis about in the following year, 2014, so why is language from the 80s/90s still being used??
The other thing I am not happy about is that the ot put in the report that I should do another night at the respite house 3. Provision of respite/ short term accommodation two evenings per week to enable continued support to Ms Milne and her family with the transition to living independently and reducing overall carer burnout, prior to Ms Milne relocating to Ararat full time in the future. I think ndis need to release that this is not possible for everyone due to the fact that some participants live in an area where their local respite house in their area - and this respite house is the only one in my area so far, is not suitable all participants. The one in my area is not suitable because none of the participants that live there are actually the same level of disability for me to socialize with them.
Submission 16It is also not suitable for me because mum told the ot
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16
that the staff there don’t have time to work with me on living skills. I don’t think I’ll really be able to practice my living skills if I’m in a “house” I am not happy at. I was also extremely unhappy when there was another participant also who wasn’t the same level for me to socialize with, when it was still a respite house, they smelt like salava - they still smelt like this regardless of the staff showing them. The staff left the door open and they got up out of bed and was about to come into the room I was sleeping in and I shut the door before they could come in. I told mum about this and becuase the other participant is a male, they shouldn’t be coming into my room. When my plan ran out, I told the person who runs the house that they came in to my room and that I do not like it at this respite house and that this male participant being there made me really unhappy. The person who runs the
house then said something that sadly I can’t remember, but I rang mum
Submission 16
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16 after that and told what happened and she was in tears after how the person treated me and this person should not be working there. Thankfully the participant that didn’t smell nice, was not coming back after this incident. The other reason why a respite house is not going to work for me to transition out of home, is that the respite house is nothing like where we’re planning for me to be living in - which my parents are currently holding off looking at for some reason. The routine will also not be the same as the a routine that will be used when I move out. Also putting me in a place where I will not be happy, will only want to make the process quicker and more impatient. I told mum about this and she said that she dosen’t know what the ot is thinking, when mum said that the staff don’t have time to teach me living skills, coupled with the fact that I am unhappy there. So unless there is an alternative to this
Submission 16respite house, then we won’t be able to do this
transition, unless mum and dad decide to buy a unit early. Regardless of the ot’s encouragement for me to have another night, I am going to resist and say NO, every time.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16 Hello, this am writing this to let you know I am disappointed that you won’t be giving out anymore money in regards to my supported independent living funding. You people do not care about the mental health of participants with all these unnecessary steps and the garbage long approval wait times this puts on my mental health and many other participants? Like for example, it so stupid and dumb that we have to put a review in JUST TO MOVE SOME SOME MONEY AROUND, that I already have in my plan. Adds unnecessary wait times and more damage to my mental heath, should be scrapped! Not to mention how my mum is on the brink of a mental breakdown. Mum said that antidepressants is the only thing saving her at the moment. You people will be to blame when your rubbish system makes people suicidal. Also I am still on a waitlist for counseling. I seriously would
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 I like to see a record made public of the people who have taken their
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16
own life because of how bad some providers are and the ndis itself. Should also note that this goes for registered providers as well and not just the non registered ones you hear in the media. The ade job I carrrently still work at is through a registered provider and you can already see that this provider is NOT a good provider, despite being registered! This is why I want to see a disabled or autistic person appointed as the next ndis minster when bill shorten leaves in February, because it is clear that bill shorten and his able bodied colleagues are CLUELESS! But why is Jordan Steele the only disabled politician? When there is 12 first nations mps/politicians?? Why can’t it be the same for disabled people? Why do we only get 1 and they get 12, TWELVE?!? So wrong on many levels. I know people don’t really like the greens, but it is our only choice if we want Jordan Steele,
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 only disabled politician, to be the ndis minster. I won’t miss bill shorten,
despicable human being he is (he should be behind bars, not a million dollar payout, he hasn’t done anything to deserve that). Here is what I wrote in my first letter as to why I do not like my current job at this ade: to leave my job an ADE and get a job in open employment. As I do not like working at the ADE, because it is boring, unstimulating and I dislike how one of the staff tells people of for the most rediculous of reasons and when this staff memeber told off another client, this other clint just shrugged and walked off and was going to tell the head who runs the laundromat subsidiary of the ADE but they didn’t bother in the end. As it is ran by the same “glorified baby sitting” service who run this respite house that is going to be a sill house. As well as what alot of other people have told the royal commission, the pay is bad. I also clash with one of the other clients there, they
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 are older, they have been there since the ADE first opened in the 90s and
they are “stuck in their ways”. They don’t wash the dishes properly and the staff let this person get away with it and they crack it when I tell them off for not washing the dishes properly. I don’t like how I’m the one who gets told off and they let this person get away with it. So PLEASE, PLEASE only take a week to approve my funding to be moved around to start my new job so I can get out of my old one ASAP! Am
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16
Hello it is me again, after you took roughly a month and a bit to approve a change of circumstances in my plan. I am writing again to let you know that you have ONLY have 4 weeks for this s100 thing to happen and be approved. No ifs, no buts! When you finally approved the change in circumstances after 6 months (the last letter really made you pull your ginger out!), mum wasn’t super impressed that you didn’t include my sill funding. She said that you people just put it through without looking. Mum is also going to the doctor to talk about how burnt out she is with the hopes that it speeds things up, but mum thinks it will still take awhile. But that is why I am writing this letter to let you know that if you do not approve of this funding in 4 weeks, I assure you that there will be some very angry people on my end (or maybe how about a week since it takes a week for you people to respond). I am
Submission 16also disgusted in you people for ndis wanting my
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 16
mother to keep me at home for longer so you don’t have to pay a cent! My support coordinator told mum this and mum told me and I said to mum that is just down right pure EVIL of you people! Disgusting! That just shows that you people think you are above the law! I am also going to say that me and one of my support workers are hugely disappointed in the royal commissions decision to only approve 13 of the recommendations! Mum and I have herd some things about the group homes that we are not fond of, like the rent being so expensive that the people living in these houses don’t have enough money left, this is even with rental assistance! I also dislike how their bathrooms look like something that you’d see in a hospital, there are ways that you can make things accessible without making it look hospital like! Like many people have already said, I would like to
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 be able to choose who I live with and where I live. This is why we are
looking into buying a house out of my own money. But houses are too expensive for me because of the fact that ade’s have such a bad pay.
Everywhere else a disabled person gets a job, they can only work 3 days, but they get paid the same amount as non disabled workers. It also shows that you don’t want to make it a law for it to be compulsory for all open employers to adapt and accommodate end educate themselves on disability to hire disabled employees. Also special schools, seems like the staff have a fair bit of internationalized ableism to unpack there. But also both the mainstream and specialist systems are broken anyways.
Also about special schools being more “accepting” there is still bullying that can happen at special schools. The special school I went to, I don’t remember about bullying, but there was definitely some kids there that have had run ins with the
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 16 law, as well as smoking underage. Anyways, this just shows why bill shorten
should be sacked as the ndis mp and
replaced with Jordon Steele-John, someone who is actually disabled! Regards, AM