National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1604
To Whom It May Concern, My name is redacted, and I am writing this submission as someone who volunteers with people living with Down syndrome and other disabilities in our community. Through my volunteer work and my close relationship with redactedand his family, I have seen firsthand the reality many people with disability face every single day.Ihave witnessedthe enormous challenges families experience simply trying to accesssupports that allow their loved ones toremain safe,included,and caredfor withintheir own homes and communities. Iam deeplyconcernedabouttheproposedNDISchangesandreformscurrentlybeing discussed. Peoplewithdisabilityshouldnothavetocostantlyfightto prove theirworth,justify theirexistenceor fearlosingsupportsthatareessentialforsafetyandin dignity.Familiesarealready overwhelmedby complexsystems,delaysfundingrestrictions,workforceshortages,endless administrative pressures.Furthercuts,tighter restrictions,orrushedreformsriskcausingevenmore harm. asomeone whovolunteers closelywitheoplewhedisability,I haveseenhow important supports are forentaining stability,paticipationindependencecommunication,saftey andaualityoflife.Thesupportsarenotluxuries.They arenecessities. iamespecially concerned about reforms being introduced before proper alternative systems a inplace.Removing or limiting supportswithout guaranteed replacement services places vulnerable Australians at serious risk.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1604
I have also seen the emotional and physical toll placed on families and unpaid carers
who are already
doing everything possible to keep their loved ones safe. Many families are exhausted,
fina\ncially
stained, and emotionally burnt out, yet they continue to carry responsibilitiesshould be properlysupported.
People with disabilittydeserve:
- Dignity
- Safety
- Choiceandcontrol- timelysupports- Fairaccesstoservices- respectfromgovernmentsystemsAustraliashouldbestrengtheningdisabilitysupports,nottreatingmorefearanduncertainty.Irespectfullyaskdecision-makerstolistendirectlytopeoplewithdisability,carers,families,volunteers,andfrontlineworkerbefor makingchangesthatcouldhavedevastatingconsequences.Thankyouforconsideringsubmission.KindRegards,VolunteerDisabilityAdvocateSupporterofthedisabilitycommunityandfamilyslivingcomplexdisability