Concerns regarding supports for people with Down syndrome and other disabilities

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1604

To Whom It May Concern,

My name is , and I am writing this submission as someone who volunteers with people

living with Down syndrome and other disabilities in our community.

Through my volunteer work and my close relationship with and his family, I have

seen firsthand the reality many people with disability face every single day. I have witnessed the

enormous challenges families experience simply trying to access supports that allow their loved ones to

remain safe, included, and cared for within their own homes and communities.

I am deeply concerned about the proposed NDIS changes and reforms currently being discussed.

People with disability should not have to constantly fight to prove their worth, justify their existence, or

fear losing supports that are essential for their safety and dignity. Families are already overwhelmed by

complex systems, delays, funding restrictions, workforce shortages, and endless administrative

pressures. Further cuts, tighter restrictions, or rushed reforms risk causing even more harm.

As someone who volunteers closely with people with disability, I have seen how important supports are

for maintaining stability, participation, independence, communication, safety, and quality of life. These

supports are not luxuries. They are necessities.

I am especially concerned about reforms being introduced before proper alternative systems are in

place. Removing or limiting supports without guaranteed replacement services places vulnerable

Australians at serious risk.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1604

I have also seen the emotional and physical toll placed on families and unpaid carers who are already

doing everything possible to keep their loved ones safe. Many families are exhausted, financially

strained, and emotionally burnt out, yet they continue to carry responsibilities that should be properly

supported.

People with disability deserve:

  • Dignity
  • Safety
  • Choice and control
  • Timely supports
  • Fair access to services
  • Respect from government systems

Australia should be strengthening disability supports, not creating more fear and uncertainty.

I respectfully ask decision-makers to listen directly to people with disability, carers, families, volunteers, and frontline workers before making changes that could have devastating consequences.

Thank you for considering my submission.

Kind Regards,

Volunteer and Disability Advocate Supporter of the disability community and families living with complex disability