National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1642

Senate Community Affairs Legislation Committee

Dear Committee members, I write to inform you that I am concerned about planned changes to the NDIS. it abundantly clear something has be done rein The Schemes runaway expenditure but it also apparent doing so creates uncertainty alarm my daughter Anderson who large measure because stability provided NDIS cusp embarking independent living arrangements.This next phase development smoother integration mainstream-living likely demand scheme transitional sense less.At present relies Plan gradually build more towards independence she will require we ageing parents no longer able provide it.is years old lives mild/moderate syndrome Cri du Chat This genetic syndrome where part chromosome missing leaving intellectual disability She live all life.is very social happy person works days week cafe assistant cheerfully chats clients become fixture establishment.attends course run Centre for Disability studies association Sydney University Both these activities allow her mix normal environments loves.I recently had health issue made realise how much女儿 rely around well survive What need put place make secure functional adaptive hers?For anyone outside hard appreciate just complicated kaleidoscope things needed make her function.We, her parents have been what necessary possible entire aware without would struggle maintain both quality of life useful role society.She needs support deserves formal informal should people own age like do thingsshe does.-As noted on trialling independent living keen family/home framework mind sought modify present arrangementsof building home shopping cooking basic maintenance.Scenario include Support Co-ordinator someone manage payment NDIS bills moment self-managed. Running house sustainably beyond autonomous ability requires help with paying utility bills solving problems when things go wrong organising appointments meetings being time appoint travel new places following map requesting guidance get too much.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1642 Organising a calendar of events is something to work on. She crucially needs more capacity building. Projecting forward it would be enormously beneficial if she found a friend/housemate to share the problems.Someone Justone who she can call on to join her on an activity.At present this is largely the role of her support worker.Diminishing her support by 50% - as suggested by the new legislation, from 4 hours a week to just 2 wouldnot be just detrimental;it would compromise the advances and capabilities that exist program has shaped.As child no network close friends existing Plan allowed explore Sydney environs attend cultural events with support person often stays attached several years whilst study allied health courses e.g Speech pathology Occupational Therapy.The investment thus amplified win-win situation lasting mutual benefit.now confident safely explore parts Sydney herself really needs these experiences another person boost ability engender sufficient competence alone.has been NDIS since inception benefited many ways.She attended Physiotherapy once weekly assist balance strength Restricting year obvious.Funding social participation should not cut half…half make unworkable Take two wheels off car useless.Remove one lens spectacles cease useful.In s case particularly where difficult employ someone short time.Trialling Independent living cost for Capacity Building so any cap such Plans restrict trial.-Each individual needs blanket over all areas feel will disadvantage lot people in our moving towards Independent Living eventually, needing NDIS at all. She loving caring sense humour big need part wonderful world we live Kind Regards