National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1655
I am profoundly upset by the proposed changes to the NDIS act. This is using disabled people as a scapegoat for budgetary issues, and confining people to smaller worlds vastly reduced quality of life & poorer outcomes\nor a benefit.The NDIS represents giving disabled people dignitry. The right access community.To attend family weddings engage hobbies have hygienic home & other aspects full life. asone who worked both an NDIS support worker dear friends rely it these changes strike me unspeakably cruel. Removing community capacity building supports not trivial.These “nice luxuries” disabled people entitled relying them.Current average funding participants receiving support leave homes around hour day.That hour vital things like doctors appointments seeing family engaging religious commuity if they one.And without this does hard or unpleasant, becomes somewhere unsafe impossible. someone deserves better isolation in their homes reduced medical care basic others take granted simply reduce cost government’s budget.This especially foul since know multiple endured farcical cycle year after year,multiple professionals paid review need certain supports.Year time work hours workers money put into exercise exorbitant needed recommended accommodations stall indefinitely. government concerned about NDIS money allocated better should do something years occupational therapists say same thing - example wheelchair user needs ramp house. Which never installed resulting endless wasted more reports ordered ignored repeated asked and so on.Problem with the NDIS is not disabled wanting dignity.It bureaucratic bloat where millions dollars go down drain for approved promised quietly forgotten while participant suffers absence. also deeply concerned definitions permanence There are many circumstances treatment theoretically available also functionally untenable.Circumstances someone has
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1655
additional surgeries that they could theoretically try, but which have unacceptably high risks of paralysis, death, or other complications. Treatment which are prohibitively expensive, only available too far away, or where the recovery would be dangerous or impossible without the very care the person could not access without the NDIS. These are all examples drawn from difficult situations people I personally know have been in. At difficult times where someone has to choose about, for example, the potential benefits of a surgery with an 80% chance of causing permanent paralysis, it is ridiculously cruel to gate dignity and quality of life behind taking that risk, potentially against the advice of their medical support team. if these changes to funding, community and capacity supports and elligibilityare implemented, the best case scenario for any given individual is that their family and friends do their best to fill in the gap. As an unpaid carer, I know the amount of time that represents.This will be bad for the economy as peopelhaveto withdraw from work to care for loved ones,making this whole exercisea waste.Andthat isthebestcasescenario.Worseoptions includepeoplelosingsupportandriskinginfectionsuncleanedhomesdepressionfromisolationanymyriadnumberofworsenedmentalandphysicalhealthoutcomes.Peoplewho losetheirNDISsupportsentirely may die fromthegap incare.Disabled people arafrightened.Theirlovedonesarafrightened.Thesecanagesarcruelmisguided,andwillnotsolveanyrealproblems.Theywilonlycausesuffering.