Submission 1676

                  and all persons cc'd within this email.

Dear- everyone included in the and guidance of G-

Please take the time to read our situation below. This is the reality of “us” as a family and our Daughter

•       for the NDIS to read, not just to rely on a report or recommendation from specialists based on a

piece of paper.

“This is not intended to make any person feel or cause to feel offended within this email it is addressed to. It is directed to the ND/5 as an organisation itselt and how the organisation and its’ impact of services and funds for the supports provided to G- are deficient and ineffective. As a result this effects her directlY, our familY, and the people who are involved in <111!1’s care, safety and wellbeing.”

I am sure you may have read and seen about what happened on the news in the last few days in regards to the family in Mosman Park and two boys within the family were found to have Autism.

As a loving father and devoted husband to my wife and our three beautiful children, one of which who is ADHD combined and ASD 3 - hear of this while away at work, and to hear my wife in tears and distressed due to the fact that the two boys on the news have autism, are a young family living in an affluent suburb, and the parents faced struggles “behind closed doors” that even their closest family and friends did not know about, it has had a detrimental effect on us as a whole family physically, emotionally, and mentally. This struck a chord due to the fact, our family situation with a child who is “gifted” and “neurodiverse” is very similar, although we are not “affluent” or “rich”. Hearing my wifes’ voice over the phone tell the story, her being in tears, made me be in tears while away at work (FIFO). Knowing a family with two boys having special needs, it must have taken a mental and physical toll on the parents which is “possibly”, not confirmed at this stage, one of the causes as well as the financial strain, for this terrible and sad state of events to occur. It would not surprise me in the slightest if it was due to how the parents, (father/mother or both) could not take it anymore hence why it turned out like this. It possibly turned out like this due to the NDIS and the organisation as a whole, have failed to provide and/or declined the adequate and specific requests from the parents who know their children the best, and this is the “worst possible outcome” for every parent with a child who has “special needs” and a reality which I have stated previously on more than one occasion. What will it take for the NDIS to take swift action, implement, and adequately provide the specific needs outlined to prevent this, until something like this mentioned above occurs, and this is exactly

National Disability Insurance Scheme Amendment Bill

Submission: Submission_1676

what we are close to experiencing. It not just a matter of time, it will be that our beautiful daughter G________ doing something similar either towards themselves or someone else. I am writing during my nightshift lunch break with my wife wanting us parents to speak up about the NDIS system’s failure regarding children needing special care due to life-long conditions while also failing adequately supporting these families emotionally physically demanding every day and night. The supports provided aren’t sufficient enough especially respite services needed so caregivers can take breaks without feeling guilty. since inception it was flawed and disfunctional. too much red tape hoops to jump over different versions processes employees tell you one process per need but when consulting another employee later they change your mind making needs irrelevant or unnecessary. difficult justify specific financial allied health/medical needs. as soon as introduced participants were using funds for personal gain instead intended purpose causing strain on legitimate families under scheme financially mentally & physiologically. everything right under this scheme, including parents such myself _. For years since Gracy (our child) only 2yrs old we followed all required steps went through numerous specialist appointments spent joint savings trying hard save future beyond conducting reports/documentation any allied professionals last two three yrs for NDIS had explain plead beg go hands knees fight prove things needed plan review overdue NDIS plan from Jan.1st’06 eventually after months waiting major downfall reviewing plans reducing funding removing particular needs thinking not necessary in case ever G NDIS just reads what is before them makes final outcome think fit the particular case point going through all that stress providing evidence reporting NDIS evaluation way out of spectrum actual requirements. gracy requires significant intensive therapies ongoing supports herself also family home community basic living social skills changing clothes tying shoelaces shower comb hair hygiene awareness toileting puberty preparing food deciding wants cleaning room assisting house chores helping younger siblings aware surroundings who around her attention focus assistance intensively placed gracy by me and particularly _______________two young brothers ages seven four require same treatment love attentions they say feel receiving mother’s care I too evident boys both say feel.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1676

are “left out and/or neglected”. For the past year,—ow doing and saying exactly verbatim the same thing”He is saying things and doing things like: “I hate you mum”

National Disability Insurance Scheme Amendment Bill

Submission: [1676]

aggressive towards her peers other staff within school particular principal Gllllll’annot self regulate emotions meltdowns condition inside mind act before think unlike normal person such l “think before you act” This part mental condition once she acted like scared knows understands right wrong anxiety guilt gets worse started -ce W-nate completely understand circumstances surrounding know is different But receive phone calls daily pick up~school cannot cope hour int-art start period pick up all issues described occurs daily at school imagine how much stress physically emotionally placed Aiza current place employment now close dismissal having leav-pick up look after Gracy rest of day then go back second semester particularly near term through whole anxiousness fear stress always looking phone waiting number fro hool simply put stalker harassing afraid answer The feeling aizahave now also-h shame guilt looked parents or pas-n going pick G-up at school School tried everything they deeply grateful thankful but we know, suitable condition. All outlined stems extreme lack funding support NDIS just set to what organisation considers sufficient To stretch limited budget facilitate services course year fortnight do ndis beneficial- I can tell not. Once three sessions consisting PBS OT Speech,.cannot learn and develop strategies gain benefit counter-productive shown from 205 until present point time detrimental impact ~nd family has sacrificed taking risk losing role her current place work mid-shift attending adding fact care two boys also had substantial financial reduction FIFO role changed company roster well paid 1/86 so home frequently assist– the boys Marriage divorce because NDIS unable provide funds children dire need In conclusion moving forward best interests recommend us as w hole included email team vehemently outlined since one reason excuse information privacy inconveniences cut red-tape agreements inconvenient rules way Communicate together find solution once all This child whose’ future hands responsible in any other supportive good times bad throughout young journey■■■■ past signing privacy documents mentally physically worn out organisations meant help who do As wife husband mother father - equally will never give up them Three children have world bright ahead problem everyone within this should understand broken dysfunctional works against families not with end result news stated beginning email We succumb becoming that way Children especially-could blame for which-and feel brought into

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1676

world for a reason and purpose. Regardless if she was born neurodiverse or not, our love and support for erherwillandalwayswilleunwavering,andwewilnotlettheNDISdestroyredactedfuture.

Toeveryoneinthisemail,__Iarethankfulandgratefulforyourlove,supportandcare__Iwillagainstronglyre-itrate, thatallthisthisinformationoutlinedwithinthisemal,isintendedtobeedirected\ntowardsthenDISsandtherorganisationitself,notthepersonstwhothisaddressedto.`

Regards,