Son with Prader Willi Syndrome requires NDIS supports for housing, therapy, and workplace access (Family or carer experience)

National Disability Insurance Scheme Amendment

Securing the NDIS for Future Generations Bill 2026 Submission 1681

To whom it may concern, My son has Prader Willi Syndrome and relies entirely on the NDIS for his housing, social supports, access to supported workplace. Without this support he would have no team around him minimising extreme anxiety nor dietary support regulating weight; OT Behaviour Support, wonderful coordinator, gym equine therapy dietician rely solely upon their NDIS support; moved out domestic violence situation group home villa complex four villas assistance from NDIS without which they could survive totally dependent as receiving assistance. Aside my PhD research Royal Commission Violence Abuse Neglect Exploitation People with disability reading every single one stories submissions made clear just access very important informs me of major issues provisions scheme badly abused price paid over again rhetoric toward people disability become unconscionable. Poorer more secure access schemes confidence remain removing supports redirecting funds against recommendations Royal Commission progress worst ways economically viable shameful consider cutting access especially true aim fund defence savings suggested Peter Dutton in Aukus re-evaluating NDIS https://www.abc.net.au/news/2023-03-14/dutton-offers-to-support-budget-cuts-needed-for-aukus/102090462 (start watching at 10:20 mins) do not understand how it is justified thinkable further defend expense most vulnerable NDIS amazing innovation country proud potential needs done good value money grow assist all require see abuse by shoddy fraudulent providers May 27th 2026