National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1691
To whom it may concern,
I am writing in response to the proposed changes to the National Disability Insurance Scheme and the current uncertainty surrounding funding and reassessment processes.
I am a 52 year old female with an acquired brain injury following a virus, and I have been supported by the NDIS for approximately five years. My functional capacity is significantly limited and remains unstable, even under current supports.
On a day-to-day basis, I require assistance with essential tasks including cooking, cleaning, shopping, and maintaining my rental property. I am not able to manage these independently. I also experience severe sensory overload, which leads to significant neurological fatigue, as well as extreme physical fatigue. In addition, I have a severe heat intolerance that further limits my ability to function safely without environmental supports.
My capacity is highly sensitive to stress and instability. When I experience increased stress, my cognitive and physical functioning deteriorates significantly. The ongoing uncertainty created by repeated reviews, reassessments, and potential funding changes has had a substantial negative impact on my health and functioning.
The requirement to repeatedly “prove” a permanent disability year after year is extremely distressing and, in my experience, has been traumatising. It contributes to ongoing fear and instability, and consumes a large portion of my limited cognitive and physical capacity. The energy required to manage the administrative burden of the system directly reduces my ability to focus on maintaining basic daily functioning and recovery.
I am extremely concerned about the impact that further reassessments or funding reductions would have on my ability to remain safely housed and maintain basic daily life. I live in a rural area, approximately 20 minutes from essential services such as shops, medical clinics, and pharmacies. I rely on support workers to access groceries, medical appointments, medications, and other essential services. Without this support, I would not be able to independently meet basic survival needs.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1691
I do not have any informal support network. I have no close family, partner, children, or friends that I can rely on for assistance. My support workers and my therapist are my only consistent support systems. My current therapy support is also essential to maintaining my wellbeing and functional capacity.
Without these supports, I would not be able to maintain my housing, access essential services, or manage daily life. Emergency accommodation is not viable given medical needs including severe fatigue, sensory sensitivity,
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1691 decision-makers to consider the real-world impact of these changes on people who arefully dependent on the system for survival. I appreciate your time in reading this submission.