National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1712
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1712
· My children have fluctuating capacity and they have a carer that can be on call for them when they need it. Tasks that they are able to complete with minimal support today they may need extensive support with tomorrow. · Notably my children take medication which would not normally be prescribed for young children, to manage their anxiety and enable them to participate in society.
On paper, they may appear to have low needs. In practice, our family holds them together daily.
Analysis by Disability Support Consultants of the NDIA’s own consultation documents confirms the Agency has already determined that most autistic children will receive mid- range funding, with only a small number expected to receive top level support. This contradicts the foundational NDIS principle that every participant is assessed according to their individual need.
The Thriving Kids program has not been co-designed with autistic families. There is no published evidence base for its support model. There are no guaranteed transition pathways back to the NDIS if a child’s needs increase.
I ask the Committee not to divert any autistic child to a separate system unless that system delivers equivalent individually assessed support, is fully co-designed with autistic families, and has clear, funded pathways back to the NDIS. Every autistic child deserves to be assessed as an individual, not sorted into a funding tier. Yours sincerely,
Rebecca Gillanders