National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1772
Submission to the Senate Inquiry into the National Disability Insurance Scheme
Amendment (Securing the NDIS for Future Generations) Bill 2026 Friday, May 29th, 2026 To Committee, We submit this together as an individual with multiple complex disabilities alongside my mother.
We express deep concern regarding changes made under consideration which could have devastating effects on individuals living within a state’s jurisdictional boundaries who possess impairments affecting daily life activities such as mobility, communication skills, cognitive abilities among others; alongwith their families.
Prior to implementation of NDIS our family had been slipping through cracks due lack adequate services & meaningful support despite having high level needs associated with various conditions including but not limited too: multiple complex disabilities; sleep apnea requiring BiPAP ventilator use; central sleep apnoea necessitating continuous positive airway pressure ventilation via BiPAP machine; hydrocephalus managed using VP shunt placement procedure; epilepsy controlled by four distinct medications administered regularly throughout day; difficulty in reading and writing tasks; impaired hearing ability needing bilateral cochlear implants; inability to perform self-care functions independently like eating or dressing up themselves without assistance from caregivers. These are lifelong medical requirements that demand constant attention towards ensuring quality care at all times while maintaining dignity amidst challenges posed thereby.
Despite these difficulties we remain hopeful about future prospects for improved accessibilities provided by NDIS program enabling us better manage personal lives more effectively than before. We believe every diagnosis represents human being seeking inclusion into society where they can contribute meaningfully regardless age group involved therein.
National Disability Insurance Scheme Amendment
Securing the NDIS for Future Generations Bill 2026 Submission 1772 These supports are not optional extras. They prevent isolation, burnout family downbreak hospitalisation crisis They help disabled people partake communities maintaing dignit develop independence experienc quality life Without these supports famili like ours will once again pushed edge We also concerned proposed chang may contravene Australia’s obligations under Convention Rights Persons Disabilities CRPD recognis rights of peopl disabilit live independently participate fully societ acces suppor without discrimination maintain dignity autonomy Policies harder profoun permanent disabilities access support rsk undermining commitments do believe changes been explained clearly transparently enough disability community Many frighten abou losing suport they rely on daily surviva safty participat sociey Urge Committ listen disable people familie wit lived experien The NDIS shoul protect strengthe narrow way plas vulnerabl people greter risk Thank considerin submissio Sincerel (mum) (son)