National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1798

To whom it may concern,

I am an exceptionally late diagnosed autistic woman with ADHD and other comorbid diagnoses. I can’t take meds due to extreme sensitivity and have only just gotten through life by putting one foot in front of the other, and sheer grit. I cannot work or contribute to my living, therapy or medical expenses which have blown out due to years of medical gaslighting and misdiagnosis. These expenses fall to the ONE person in my life, my husband. This has left us with the prospect of being reliant on the government for a pension in our aged years (yay.. more lack of treatment, no funds for medical expenses and living hand to mouth).

I have literally just been approved for NDIS after using an academic bursary to pay for diagnosis. Now I am trying to use my measly funding to get a functional capacity report to get some real help so the last third of my life doesn’t suck as much as the first 50 or so years. You can not cut funding. It will take hope and any support enabling access to therapies and will cost more lives.

Chase the rorters. Tax gas companies. Remove criminal and sex offenders from the NDIS that is used as baby sitting. Look after YOUR own. Come and live my life and then make a choice.

This is my lifeline to hope that I can learn to accept myself and get some help to be a somewhat semi functional person. There is so much wrong with this system, but it is not us. Do not punish the people who need this.

Kind regards,