National Disability Insurance Scheme Amendment

Submission: Supplementary Submission - Bill No.

I had an art conference call yesterday and found out regardless what level transport funding put us at ($68 per fortnight; fighting Level 2 $170). Two sons eligible due vehicle modification costing over $30k last year. Third son not allowed apply because his plan covered this cost on their bus.

Participants cannot use recurring transportation payments for diesel/fuel/gas which discriminates rural/regional Australians/their families without public or ride share services in Berri where buses/trains/planes do not run regularly nor are rideshare food delivery available even taxi service quoted one-way trip from Berri SA Adelaide Rundle Mall $770 with driver waiting time included back home.

Refused refunds admin costs told everyday expense despite spending thousands equipment/admin costs printing digital forms needed NDIA providers each boy set paperwork completed scanned computer emailed multiple times size too big single email. Cost paper electricity internet computer programs purchase subscribe constantly update see fricken forms first place cheaper government taxpayer pushing onto informal carers plates no financial support manage these costs.

Want to really emphasize that family has only option leave paid employment careers sacrificed own health life goals hopes dreams daily care boys need deserve basic human right.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1802 - Supplementary Submission

We are forced to live off income support payments alone now that the boys have completed their education. we had to fight for the better part of a decade to get approval back in 2019 for carers payment/allowances “although” it works out to be a whopping $3.40 per hour and/or each person cared-for while providing 24/7, or redacted hours-on-call covering multiple-staff at-the-same-time over several-different-professions-industries every single-week, last-18-to-25 years-in-order keep our three-adult sons-with-multiple-disabilities alive-and-safe which again-is-a basic-human-right-we-all should-get-enjoy

So when you think about-it its pretty insulting-that Australian-government doing this & I wonder if they would ask paid employee do-these!!! The recent national minimum-wage increase-for-three-million-Australians-to-$26.44-per-hour says not That also doesn’t even take into consideration financial-costs losing all annual- sick leave-paid-public-holidays-off superannuation or-even possibility-of turning phone-off-or silent-even-if we could-live-in-fantasy dream-world obtain any-resemblance break staff-get enjoy everyday Finally want say big Thank-you taking time read what have-to-say twice now-family extremely excited part of senate-committee-hearing process hopefully with some-changes horizon