Disability, caregiving burden, and medical mistreatment (Participant experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1851

Hello,

My name is [redacted]. I am 40. I was born in Sydney.My dad’s family can trace their ancestry to the First Fleet andmy mum anda her parents immigratedto Australiafrom New Zealandwhen shewasa child.Her grandmotherwa s alatvian Jewish refugee whoescapedarussian pogromthat wipedouttheir ancestral town.Mydad’ sdadwasa decoratedwar hero,a spyin WW2anda best storyteller Ive ever known.Australia hasgivenm yfamily many wonderful opportunitiesandy m fami lyhave workedhardt ohonour that.I wa sr aised tob elieve th atthis wasthe lucky country,where everyonecouldgetafair go.I w asbornwithmultiple disabilities.My parentswerealwaystakingmetodoctor’sappointmentsandreallydidtrytheirstbesttolookafterme.Unfortunately,it wasn’t enough.Im havebeenassessedasunable tow ork andh avebeentryingtot findwaystokeep myselfgoing.Mydad diedof cancerina n 2016amymumisretired. Ilive with myfiance an dhehasb eens houlder ingth ebur den of caregivingwhilstworking afull timejob.It ist r estroying ourrelationship.Idave beenfighting an uphill battlewit he NDISfor yearsnowtog ethelpI need. Due t om edical mistreatment,m anyo fmy conditionsare significantly worse than they should beand the strainoft ry to manage my health anda fightagainsta systemtha ts designedto see me ass lessthan is exhausting. Im am incensedthat thesebar bariccuts areevenbeingconsidered.Wear oneot ther ichest nationsintheworld.We havethe resources .We ha ve capacity.Whatisthet point ot them on ment ifthey do notlook aftert he people?W en don’tneed tog odownthis path.Thesecuts will killpeople.Ihaveafriendwhoistr erifiedheandy s partner a re goingtocome homelesse because oft his.Iha v econsideredsuicideasa l ternative tob eingab urdenon y loved ones.H umansneede community,we nee dto lookafter eachother. dont think it’s unreasonable toe xpect thatthe lucky countryactuallylooks afters itspeop le.Thereisno reason other th an greed andcrueltytospendmoneyowarfare forthefragileegos of menwhenAustraliansneed help.Many peopl e ar ew orkingtomake things betteranda n youcan too. Thankyoufor taking t hetime tore adm y email,[redacted]