National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1866
The NDIS means that I can afford to provide for my family without the significant financial impact that covering therapies would have on my family. I can afford to be a mum instead of a carer. I can afford to work, in a much-needed role in healthcare.It means that as a disabled person myself, I can have the help I need to fulfill all my roles and responsibilities with much less stress and impact on my wellbeing. Family relationships are not purely transactional about who can help where and when. It means I am connected and supported by people who understand my and my families challenges and needs and work collaboratively with us to navigate those challenges. The proposed changes terrify me.THE language is negative; it blames people with disabilities, it says ‘Be grateful for the help you get and shut up’. We’re human beings too.Equity is about having the same opportunities to live as someone without an disability.These changes aren’t just about equity or rights disabled persons their carers.You expect more from them with fewer resources.As woman mother health care worker sick of it.If lose these supports nothing available support what need at price affordable.The systems state level community programs hospitals GPs social programs schools skill building etc.,are there.And earning income rarely eligible for these programs supports.I don’t qualify Carers payment financial Centrelink nor do qualified Healthcare concession card.Carer’s gateway has month-long waiting lists practical supports would make difference but they so short term negligible.There currently exists no support family members Community level. I’m tired government rolling out poorly thought-out changes that reflect lived experience will be massive.Our EDs already under pressure years.GP weeks wait doctor familiar history cost living rising want carers do? Reduced our hours even leave paid employment entirely because penalised needing pick-up sick distressed children family members Or taking day off attend another appointment advocating ours families needs.Needing find time spend navigating convoluted systems minimum.Dare think can put more back us Dare treat like afterthought.No meaningful movement communication on what supports people removed NDIS.Poor planning equals poor performance doesn’t take much understand strain services exist.Have not explained clearly enough how provided whom and How WHat are the timeframes HOw to access these supports.WHAt Will Cost private if cannot afford privately initial psychiatrist appointments anywhere from $700-900 where am.How anyone able engage with treatment when costs of care high If add regular therapy, supports intervention kinds proposed changes.Is your plan disable more until all die out Until we those who care for or cared down give up.We entered NDLS because required makes impact were available at community-level significantly unaffordable.The investment needed now ensure adequate community-based supports alone fill gap ridiculous.This should have been co-existing policy introduced.THE creation aimed creating a more
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1866
robust and resposive community based sector that was affortable and flexible enough to meet some of our needs. You have hospitals being built that are still not disability inclusive to allow patients and staff to receive and give care in line with necessary accomodations.The public waiting lists for anything through community healthis3to6toumonths long ThestaffrequiredtoruntheseservicesarenotthereTheexpertisetorunnetheservicesthere.I’mworriedformyownfamilybutalsoothers.ThesepeoplehaveachanceontheNDIS-andyouhavanoportunitytomakeitevenbetterandstronger-butthatneedstohappenwithinthenDIAandsitsprocesssandproceduresaspreviousreportshave shown.Notbydemonisingandenalisingpeopelchildren-who needthehelp.InarecentARThearing, my family hadtolistentothexpert independentOT stated thathamily membercommunity support fundingwasnotinvalueformoneyan dthatheshiouldinstead remaininhishome,andbedrivenaroundinacarforeachhourseache day.Becauselevelof anxietyandagitationmymy familiemembercanshowinthecommunityrequiressignificant supportsthaedtotobetailoredtohisindividualneeds.Somethingwhichispossibleandi sbeingimplementednowwithsmallincrementallstepskeeppacewit hmyfam ily memberscapacity.Butsure,hiscommunityparticipationismore value formoneyifhedoesn’tleavethehouseexceptbe driven around in car. How’s that for community participation? The reality is that anyone can become disabledina moment-I have seen it as a nurse and I knowitasa human being.Weare better when we suppor teveryoneourcommunitynot justthosedeemedworthy.Pleasedon’makethes changes.Theywillcausharmharm thats amplified by YOUR rhetoricandlack ofunderstandingwhatitis to bedisabledandleve las adisabledpersonAustralia.Harm willimpactnotjustindividu alsbut families who are already dealing with levels stress complexityandexhaustionyouclearlydon ot understand.Thesechangeswiniundatealreadystretchedservices providers staff at breaking pointasitis.