National Disability Insurance Scheme Amendment

Securing the NDIS for Future Generations - Bill 2026

Submission Number:

Submission submitted on May 23rd, to Senate Community Affairs Committee.

Who I Am:

I am writing as K’s great auntie who has been part of his life since he was born.K suffers from Cri du Chat syndrome which results in severe intellectual disability alongwith significant communication delays complex behaviors of concern high physical needs.He belongs into our extended family.I see him regularly and care deeply about him.The bill proposed will cause harm to K and families like hers because we are an informal network surrounding people living disabilities.We have seen what life looks like up close and therefore have stake over happenings regarding those whom love.

What I Know From Being Part Of The Family:

The NDIS when it works well gives K something invaluable-a degree predictability knowledge that there support worker at event,that she can attend pool someone skilled familiar help her communicate manage emotions new environment.Funded supports enables K be herself parents whole family present rather than stretched trying alone hard mother every day sacrificed career rest time energy available other children care K.NDIS does not do everything provides enough make possible this bill reduce even that. My Concerns About This Bill After learning amendments several things greatly concerned me the following points:

• **The cut community participation funding October is a blanket reduction takes account individual participants actually need For K means less access friends isolation Parents burden currently helps share
• Minister given power further cuts any support anytime oversight avenue appeal frightening level

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1887

• Of unaccountable power over the lives of some of the most vulnerable people in our country. • The Bill implies that parents should absorb more care themselves; K’s parents already exceed what others can sustain without serious consequences affecting everyone involved; • Removing appeals leaves families with no recourse when wronged, reflecting an attempt at accountability rather than system functionality given NDIA losing many tribunal cases.