Concerns regarding NDIS changes impacting autistic son and family carer (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1888

Dear Senators, Date: 26/5/2026 I am writing about the proposed changes to the NDIS. My cousin has a 22-year-old son who is autistic as well as having mental health challenges; he faces enormous difficulties in daily living which makes my cousin’s family struggle too.My cousin loves her son very deeply.She would do anything she can ensure safety and wellbeing of child.I have watched how my cousin cares their disabled child wanting them normal life quality non-disabled people take granted.Cousin had reduce work hours then give full time completely because level support son needs even current level they receive.Nearby year when caring mum dementia became difficult.Just heard worry future care partner both getting older burden other children again worried all levels NDIS get understand first hand importance NDIS cousin son family gives small breaks come air reset caring responsibilities means continue caring son.Knowing experience worrying me following:

  • Minister will cut participant plans at will despite approved by NDIS;
  • Proposed cuts social community supports shift more responsibility families especially women make lives harder already running empty;
  • Cuts these supports make his life much isolated smaller less fulfilling things that lost with cuts make him happy particularly doing activities catching up friends accessing new opportunities making new friends. My cousin’s son also wants live independently from parents but this not possible if those supports are cut;

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1888

  1. There has not been proper consultation about the proposed changes with the people-participants, carers and service providers-who will be affected.
  2. That the proposed changes will undermine the provision of early intervention, and that this will be much more costly in the long run for the community.The needs will not disappear-they will just manifest in demands for other services: mental health services,hospital services,and probably juvenile justiceand correctionsas well.Earlyinterventionisacostsavingexpenseinthe longtime.AlsothestateshaveindicatedtheywillnotbeabletoreplaceNDISserviceswith‘likeforlike’.Whatthismeansisthattherewilbenoindividualisedsupportsforeachildrenbasedontheir specificneeds.
  3. ThattheproposedchangessignifythatthegovernmentnowconsidersthenDISlikaincomesupport scheme(welfare)rathertanasasupportsystempeoplewita disabilityneed inorder to liveour communitiesandlead dignifiedandindependentlives. Thankyouforsconsideringmyconcerns. Yours sincerely, redacted