Impact of reduced social and community participation on a son's independence

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1900

Proposed reduction or social community participation

The creates a recluction of supports that pre.rent lsot.etion and maintain communityineluslon. fundthrout}l support delermlnations (s34Al. canges to me Reasonable and Necessary Criteria. jAsa motner and a carer I em ooncerned mysonwJt beeome more lsot.etecl. SE!greg&tecl and ctiscon.nected rrom the oommunJry. This tuncting iswnet The BIU c:ne~ the tests ptenners must apply wnen deciding hei,:,s my son maintain triendanlps, ret.etlonshl ps with ramity, partlclpete In community actNlties, leam sldus, dENetOP independence and oommunlty lite. wnetoor a support Is tunded. Cost, ln:ormal supports and parental responsibility may play a t.erger role In fl.meting responsibiUtles immensely and recluoes my capadty to wo,1(. I am oonoerned reduction ot tundlng will put turther oonatral.nts on my time and I will have to reduce myworld.nghours futher end I wiu beeome futher lSOWed trom trienos and lamlly. linaeesed reliance on parental responslblityergumems. There Is a c:nenge ro me Reasons Ille end Neoessary criteria jAs my son gets otcter tnls tunctingtsupport w111beeome lnaeeslogy necessary in helping him bUild independence end leeOng oonnected to others and th atl.ngthe NOIA f’RJat remember parents ere responsible tor oommunlty. It will atso assist him In bUildlng sldUs lor hlgti Sdloot end entering the worklorce. Hisctlsa bility Is lile•tong hC>WE!Y’el’ his a blOty to team wwys ro prwldlnga substantial a.mount Of support torthei.r m •dren. mexlmlse his pcKentlal and selt•suttlciency ere dependant on wtlat Intervention he can reoeive.

I em gr&teflJl Mrf <Jt¥y tor the NOIA and me tunctlng we receNe to support my son. It keeps us a:toet. tlnenciauy, emoclonatty and ment.atty. It ~e us hope or a future tor my son and me dream ot him t.Mng independentt)’ end nOl being reOant on me until I dJe or being ctependan, on me state.

Carer burden is reel and si~lflenL My(lte and my nealth lsve,ydJfterentto mytriendsand tamlyeround me that live with non-disabled c:nlld.ren. The Impacts on my neatth end weuoelogare Immense. There isVE!f’flittle ·bucke( tiUling“ time tor me. Be..-weenwort end caring there isVElf’Jlittletlme for sod.at or emert.alnmem type activities. Pa:>pte have actuauy smpped estdng because they know the answer Is no. The riskS to myself and my son areVElf’reel it we oon’t receive tunding tor support work and social and comrr..mlty pertld pation es we don’t have any informal suppons.

1: our format suppons ere reduced. the wort does not disappear. It Is transterred back tome. back rowomen (moSl commontythe carer} disproportionetetylmpectlngwomen. This wilt Impact mosttywomen in paid wo,1(.