National Disability Insurance Scheme Amendment

The NDIS is already difficult to access. On average it takes years to be approved, most applicants having had at least once appeal rejection. The NDIS is complex debilitating disability despite need daily life yet applied know uphill battle friends same disabilities mine during application process due enormous amount work testing requirements stress some them give up nothing show for it even though provided help once on NDIS battle does end supports place always defended justified getting anything new needed also fight These changes propose make harder accessing using NDIS Broad powers cuts funding categories support failure consider individual circumstances leave many people without what they need My disability combination my body history skills personality environment resources available me mostly bedbound occasionally able house careful planning medical appointment friend with severe level mine week two spend time out bed him wheelchair suited needs home carers helping every day lives near accessible public transport comes almost right door So in his everyday practical terms he less disabled me With regard ‘permanence’ changes firstly ridiculous prove their will never go away before can get help idea other programs should but not cutting game town hurts Also requiring proof tried treatment breach human rights bodily autonomy means being choose whether or want medical intervention any reason Having threat of support withheld free choice For ME/CFS diagnosis mainly clinical few reliable tests shows strong indication patient has CPET exercise test repeated over days This test recommended however guaranteed worsen patients condition PEM negative reaction called chain causes body lowers energy reserves often limited sometimes permanently known more than one person agonised undergo clearly harmful just access to treatment, support benefits inflexible systems

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1921

Similarly, there are topics which misleadingly suggest Graded Exercise Therapies as treatments for ME – these therapies share comparable risks but more severe due their prolonged duration compared to CPET. Despite overwhelming scientific opposition, a significant number has been advised—and continues to receive advice—that they must undergo Graded Exercise Therapy prior qualifying for disability pensions. This trend is likely to persist under new NDIS regulations too; making it increasingly challenging to contest such unjustified demands.