National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 194 Commission Secretary Senate Standing Committee in Community Affairs P.O. Box 6100, Parliament House, Canberra Act dear Commission Delegates, Re- SUSTAINING NDIS FOR FUTURE GENERATIONS BILL 2026 My name is redacted, a mature female who acquired disability at age 41. I live in small community of about 700 people with providers required to travel an hour or more to provide me with daily care supports.I am asking that the legislation as a whole does not pass,as it will move the scheme in the wrong direction for current and future generations.It is,in my opinion,a discriminatory and biased documentthatisnotwhatwaspromisedtoallAustralianswhentheoriginalNDISActwaslaundered.NDISEngin2014withthepromisetothelocalpeople.Onbehalfofthepopulation,theNDSIActpromisedtoprovideaninsurancethaopleoplewithdisabilitywouldbesupportedtoliveamorenormallife.Theywouldbeassistedtocoverexpensesbeyondwhichhealthyandable-bodiedpeopleneededtopyeasananti-discriminationpolicywithinoursociety.NDISAAct_2014promisedHOPEFORTHEFUTUREGENERATIONSSwhere_disability was notasbulliedandkickedabout,madeapawn,andpeoplewerenot to be institutionalized_and_hidden from society astifitobeadisgust anda burden. Family’s rejoicedatthehopethey would no needtoplacen young adult children into nursing homes ,an they could see theirchildreninsafehomesliving independently after they were dead People_with disabilityrejoicelandfeltahuge weightburden takenfromtheirshouldersthinkingthenidisfundingrelieves themandyourfamily of povertyandshamelor livingalifehalflived. My disabiltyismyaligencephalomylitis and acquired in 2004.With the NDIS Act passing inn 2014, I lived for th promise_from _to whenthescheme rolledoutinmypostcodeandiwasacceptedunchallenged.Iwaincapacitated,boundbedboundandanofamilyorfriendstoaistusandon community support open to me.My physical emotional financial situation wsdire.Overtimeyrs_ofdisabilitwaitingforthchancerequestaccess tNDISI wasnabletoshower,wash my hairbecame malnourishedandehydrated resultingindeliriumandalucinations.Bedingwasnotchangedformonths allowingbuildupdeadskinandahairtoprovideanevironmenttosupport millions silverfish that infestedthemattress(Icouldfeelflemeatingdirectlyoffmy bodyandnoenergytotoprotect myself).Duringtheseyears Ihad no access_to healthcare professionals an those who had been caringforme previously admitted

National Disability Insurance Scheme Amendment

Submission: Submission-194

defeat, saying they had nothing left to try. It was recommended ‘go home’ rest’ withe current being – die.’ it possible my quality live will revert low unhealthy standard should legislation passed And, im alone several thousand others complex conditions severe impairments face FUTURE like experienced above worse Future generations partially funded having access fundung mean they INVISIBLE IGNORED bed-bound filthy beds malnourished zombie all around country.The scheme’s license participant greedy new laws Quality Safe Guards see bad actors system saving millions without participants paying penalty unlawful acts.In 2026 changes this promise proposed look:❘ Limiting participants society health care basic needs❘ Removing valued workers (under registration) from where it’s important experience connection than formalised studies forgotten books closed❘ Giving KING POWERS govt minister ironically pay rate determined independent body avoid coercion bias overpay themselves.But here we see disability not provide same safeguards❘ Completely changing eligibility whereby for some medical researchers and practitioners have no answers treatments cures yet expected every treatment numerous impairments which be never ending drain patient Medicare on the health unless dies first❘ Forcing treatment qualified medical practitioner has unsafe unnecessary based individuals’ responses ability leave afford hundreds thousands dollars decades lives pursuing unreachable gold ring merry round Changing functional assessments determine ndis needs assessment fails related individual needs instead fills preconceived notion able bodied person believes suffice scraps feed poor pitiful as supports.❘ Human rights review regarding even tougher test functional capabilities need NDIS support life The SIMPLISTIC view of disability applied under Bill is unsafe return draconian thinking implies that community treated unworthy sitting big people table, unworthy being seen in living more normal lives given true co-design opportunities ABELISTS are people or governments hold belief favours non-disabled people disabled. Ableism discrimination prejudice social oppression directed against with disabilities.

National Disability Insurance Scheme Amendment Bill

Submission: Submission-194 Ableism operates on the assumption that typical “able-bodied” abilities are superior often treating disabled individuals as inferior or viewing them as problems needing fixing controlling. Intentionally this gives controls reeking of ableism Disabled people will be subjected being labelled boxed way “control” including loosing funds access their communities implies permanent impairments can overcome every barrier removed because need learn how normal Below offer personal story each point above Limiting friends/family health care basic needs With confidence receiving social and community supports plan purchased second hand accessible at our expense ($85,000). As pensioners many years cost insignificant financial security NDIS did fund modifications vehicles Buying an wheelchair scripted much assessment specialised occupational therapist which new functional capacity ignores I am isolated case Many participants continue high cost disabillty equipment AT themselves ndis offers hope physical support legislation passes sell vehicle loss return housebound My disability isolates public other transport buildings highly populated spaces cannot control temperature chemical fragrances light noise levels Being in is risk unless have supports available trip using own safe to see specialist dentist accommodate my disability uses 7 hrs funding trip beach picnic (not swimming) use hours funding travelling relatives comply with for celebration travelling myself vehicle reasonable time visiting does not travel two hours stay mins

National Disability Insurance Scheme Amendment Bill 2026

Submission 194

Community Supports Replacement NDIS Funding

My disability denies access to groups or community programs which government intends to fund as “replacement support”. I will not benefit from this legislation if passed; instead I’ll face penalties due to being discriminated against because society requires confined lives compared to convicted criminals?

Registration: Removing Valued Workers From The Scheme

Where there are too many bad actors in sectors, registration won’t stop those wishing fraudulently holding power vulnerable individuals:

• My workers must comply under standards mainstream registration allows;
• This isn’t cultural/religious but equally valid reasons exist, because my disabilities involve neurological, physical/cognitive/sensory impairments that synergistically interact (one effect influencing another).

Reducing choice over who works with me discriminates abelistically: capable people shouldn’t be placed into boxes fitting others’ beliefs systems.

King Powers Decision on Funding

Members of parliament have salaries and allowances determined independently—suggesting a Minister/Government Office holds payment powers for scheme participants is biased/discriminatory—a different rule applies.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 194

The Bill intends to allow plans be adjusted on the fly, yet the budget we are told has to be managed and made to last or we will be punished. How can anyone hold stability when the threat of fund being taken at short notice appears seemingly at the whim of an elected official with agendas that may not benefit the Australian people.

• The minister can remove funds on Friday afternoon; participants become out-of-pocket without support, continually trying to adapt to unstable plans in fear they cannot pay workers due to forced once again living unhygienic lives isolated because promises break hope gone?

NDIS was created as Govt Authority avoiding KING POWERS, although subsequent legislation changes have moved arbitrary decisions CEO level unhealthy overall scheme too.

Adding further arbitrary control currently elected those who come future defies good sense reason Quality Safeguard’s commission inappropriate unsafe participant needs risk from lack services supports.

An independent body should determine what each support costs under participants’ plan.

Completely changing eligibility forcing treatment: The proposed legislation means qualified medical practitioner opinions treatments recommendations considered unlawful incorrect unnecessary eligible.

Instead is determining medical requirements treating under access eligibility individual persons health environmental factors like where live whom live modified home or not.

It also fails capture disability impairment complexities contra-indicated something only a qualified doctor would know.

Inaccessible based individuals’ health responses treatment ability leave home afford decades lifetimes hundreds thousands dollars pursuing unreachable gold rings while treatment merry-go-round abnormally narrow view any govt suggesting helping Australians inclusion acceptance.

A NDIS technical group “recommending” and therefore FORCING treatment legal certainly Australian way. In my opinion experience forcing treatment seen restrictive practice causing harm.

National Disability Insurance Scheme Amendment

Submission: Submission-194 Doctors are “the” qualified practitioners under Australian Health dept to determine if a person has exhausted all appropriate, accessible,beneficial,and effective treatments ofimpairment arising fromacondition,iedoctors studyfor7yearsplusandareexperts inthefieldofmedicine(expertise medicalpractitionersingeneralpractitioners,notonlythosewho soeviskisevinasingleareaof medicine). Force treatementbyagovtbodyisputtingpatientAT RISK—I fearthestheGovthasnotrecognisedthen indemnityinsurancecomplicationstheywould openuponmedicalprofessionalsifthisforcedtreatmentsituationwere omadealawunderndisaccess. I have Myalgic Encephalomyleitis(Mecfs)withits physicalneurological,cognitiveandsensory impairmentsallmeetingeligibilityaspermanent andsevere impairmentindailylivinganda ccess forsocialcommunityactivities Asfar as I’mawareamone ofabout150200 participantsknown tobeonthescheme(ndistats tics).MEcfa nuerological conditionwhichissimilarin impairemttomultipleSclerosis,MotorNeuronedisease, Parkinson’s,Dementia,AquiredBrainSpinalInjuries tonameafew The lownumberparticipantswithimpairem entarisingfromMecf isdue to therebeing NO CURE OR REMEDY FOR IMPAIRMENTS where managementoffimpairmentismoredifficultasthere istypicallycontra indicated treatments in one impairment against another When the medically untrained ndis assessors looktoan“inhouselist” theyinitiallyrejectaccesstating not all known treatmentshavebeen tried Notallowingthat accesstotreatmentisp rohibiteddirectedue todabillty Impair ment Andthemedicalyuntrain ed accessor doesnotrecognise when adrug ortreatmente thatmayworkforaperson withsimilar Impairmentis drivenbyadifferentunderlying causes To aperson Mecfsthesamedrugortreatmentwillbemedic ally contra indicated inappropriate inaccessibleandlikelytonot beeffectiveor beneficialbutthereversecauseharm Onlyadoctorwouldknowthis NDISalreadyfight hardagainsttheMecs communityongroundspermanent Impairmentandseverelyincapacitatedpeople Thisiscauseitcontinuesto use debunkedevidenceofatreatmentprotocol aspart ofmeetingeligibility Thataloneisdiscriminatoryusuallyoverturned atART andnow thisbill proposesforcingthis harmfultreation ocomplywitha treatementdecisionslists made byunqualified persons unfamiliarwit hconditionorthel individual involved

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 194

• The debunked (not) treatment GET/Cbt is harmful but many patients currently force themselves under reluctant educational medical referral to attempt this faulty rehabilitation program in order to be found eligible for NDIS.
• Some take harmful testing as a two-day Cpet test showing metabolic dysfunction making them more disabled or permanently worse: I personally cannot access places where temperature, chemicals light noise control is unsafe contra-indicated exercise programs inappropriate psychological treatments without any chance being effective beneficial underlying cause NOT psychiatric And rather than seeing my impairment increase profound high care SDA will need paid if
• The risk harm worsening impairments happens those Mecfs one reasons why NDIS TABIP team should responsible determine lack accessibility see person excluded from NDIS support.
• Let removal Lists A B fast tracking conditions naturally fairly adjust participant numbers existing eligibility functional capacity laws because it will. Do not tighten strict eligibility rules impose unintended consequences individual human lives society general Don’t allow NDIS TABID group determining treatment they know patient’s records environment Govt funding duplication roles Health systems APRAH removing decisions qualified practitioners with histories interest patients care This value tax payers money would separate new class citizen emerge when disability discrimination meant law Changing function assessments As educated and lived experience of assessment I-can purely based Physical Impairment Mobility Self-care domains legislation changes are 6 categories impairment – physical neurological intellectual cognitive sensory psychosocial.

Submission 194

Nor are the changes removing the domains – mobility, selfcare, self management, communication, socialising, learning, or access to social activities. community and economic participation. Having an assessment i-CAN (I CAN) that limits functional capacity just to two parts of the Act would be inappropriate, possibly illegal. an NDIS-NEEDS Assessment should not based on single flawed tool; if such existed legally identifying all forms disability loss it’d be miracle / man living Mars tomorrow. The thousands evidenced-based assessments from which medically qualified assessor can use form opinion make LEGAL recommendations. NDIS has opportunity responsibility train doctors AHP correct eligibility impairment & fuctional loss using NDIS staff workers who obtain certificate short course hold life experience cannot responsible peoples’ lives. you quality safe guards commission accept this moving higher standards providers ambiguity bias discrimination disabled people. Using qualified experienced medical professionals makes more sense expertise accessibility issue legislation wants strip under eligible eligibility now under functional capacity as well The number certified assessors NDIS produce minuscule compared numbers assessed at any given time. do participants held waiting lists until triaged disability needs elective surgery with years? is not what was promised Australian people. Removing human rights review- If issues I’ve drawn attention above isn’t sufficient then goes even further removing disabilities community fair judicial decisions.- one biased or controlling accessor one tired disinterested data entry person mistake setting algorithm AI parameter and lives shattered for 5 years without support because they have no justice system to access.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 194

The legislation creates a “closed loop” – assessed, review, rejected, appeal tribunal can order a reassessment with same faulty tool or bias and culturegrownintheaccessoriindustry.* • TheARTisleftpowerlesstoaassistalargesectionofthecommunitywhichistodiscrimination. Disabilitydiscriminationisillegalyetthisproposedbillsetsoitselfabovelawdenyingjusticeinthenameofsustainingtheschemeforfuturegenerations.Again,IaskthatyouvotenegativeandenforceCO-DESIGNwhichthecurrentACTrequirestoBea lawfuldecisionaroundchanges.Yoursincerely,