National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2025

Senate Community Affairs Legislation Committee

Inquiry into the National Disability Insurance Scheme Amendment (Securing the NDIsFforFutureGenerations)Bill2026

Submittedby: redacted ,on 27th May 2026

Submission in OppositiontotheNDISAmendment(SecuringthenDisForFutureGenerations)BilIi2026

I write this submissionwithdeep concern,andwhithope thosetaaskedithescrutinisingthisBillwill takethe timeto understandwhatitwllmean.Notinpolicyterms,buthillivedreality,foryoungadultslikemyson.My19yearold sonliveswithestXBP1(a rareneurologicalconditionandAutismSpectrum DisorderinerionalsouthAustralia.Herequires24/7 support.Ourfamilyhasspentyearsbuildingastablestructuredsupportsystemthatisfinallyenablinghimtolive anddevelopskillsmostpeopletakeforgrantedinproposedBillrisksdamningeverythingwehave workedsohardtopput inplace,notbecausehisneeds havechanged,but becausefinancial targetsarebeingplacedaheadoftheadividual needs of people with permanent significantdisability. ThelNationalDlsbilityInsuranceScheme Amendedment Securing then Dis For Future Generations Bill proposesarange changes that taken together pose a serious threat to my sons wellbeing safety anda developmental trajectory.The proposed50% reductiontocommunity participation funding would be catastrophic formy son. He cannot recognizendanger does notunderstand road safetys and is vulnerableexploitation by strangers His weekly activities work experience exercise sessions horse riding are no extras They the foundation his NDIS goals Cutting thisfunding in halfdoes nol mean heparticipates less It means hes stays home becomes isolated loses years progress Our family selfmanages oursons plan directly employs hissupport staff Hestherapy teamidentifiesstaff consistency as clinical necessity not preference.He learns through predictable repetition andbehaviourdeterioratess whenhistroutine orteamchanges This model delivers better outcomes at lower cost which exactly whattheBilclaimsbe pursuing We concerned change unregistered provider pricingandselfmanagement arrangements will make thismodel harderor impossibletosustain forcing him intoarrangementsthat ha already been assessedas unsuitablefor his need Beyondthefundingcuts Bils new budget method allows funding t cappedby typesorgroupsofsuppor amendsNDISAct so financial sustainabilitybecomes legal test whether support fundedThis fundamentally undermines principle supports must reasonable necessary individual My sons Vineland Adaptive Behaviour Scales results place below 1st percentile age group with skillsassessed level child under four Blanket caps based on averageswillnotreflecthis reality System where algorithm rather than person who has read reports determinesplan putshim serious risk

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2025

Our family has always managed our son’s funding responsibly, negotiating reduced rates, stretching every dollar, and following the evidence-based model his therapy team recommends. He is exactly the person the NDIS was designed for: someone with permanent significant disability making slow but genuine progress with the right support in place. His five goals—self-care independence, safe community access communication employment skills—and an active life—are achievable only if his support remains consistent and adequately funded As currently written This bill does protect his future We respectfully urge Committee recommend amendments that protect people most complex disabilities rather than trading their needs budget figure I am suggesting That committee:

• Rejects Proposed cut social participation funding or at minimum requires assessment before any cuts are applied participants high complexity support needs Ensure capacity building reductions based on evidence assessed individually not blanket percentage Prohibit use cohort funding caps where individual assessed need exceeds average Protect self-managed directly-employed arrangements deliver superior outcomes lower cost Guarantee new eligibility tools validated intellectual disability no participant receiving supports will lose without full review Extend consultation period so families can participate meaningfully My son a right live meaningful developing The NDIS made possible proposed changes this risk taking away malice through blunt financial instruments applied sufficient regard to individual need South Australia