National Disability Insurance Scheme Amendment
Submission: [2047] My name is [redacted]. I am a mum, Carer, Communication Partner, Team Facilitator and Advocate. Saturday 30th May, 2026.
I will be 62 in a few months. My son is 34 years old who needs 24/7 support to keep him safe to continue living on his home of work (yes he pays tax), bike ride garden swim COMMUNICATE do pretty much things you might as well do He does NOT want live group with others strangers hugely impacted policies procedures have benefit having known Aunty whole my Nanna from +years ago common send people intellectual disability institutional care large cities institutions She other mums took upon themselves fundraise employ teacher schools refused educate children One spare room converted classroom for learning Once they became young adults again parents were encourage ‘send them away’ took guidance their children lives Group homes new approach governments move out institutional Despite nan friends hope hard work raising now young adults buy home live instead become staff dictated terms conditions happened home rather than people live Research shown that groups not lived up expectations equal choice control Groups smaller next door suburbs
Son also supported myself dad unwell provide supports despite lack someone cannot speak words uses wheelchair has complex sensory needs seizure disorder seizures last hours needs [redacted] supports Because firm belief part family community worked hard support mainstream schooling play sport older open employment help maintain friendships makes easily but when phone call friend course need help so. It only past year introduced speech therapist term robust communication system another parent pre-NDIS couldn’t find a speech therapist learned mum bought program and learn communicate model AAC give son voice who use it months shut down didn’t trust wasn’t just gimmick disappear When he used told me hurry go away all got say about stop wait at long had power environment. Late start providing essential life saving tool giving autonomy make own
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2047 decisions – he uses PODD, an Alternative Pencil & other forms like voice sounds body language; now trusting team ensures devices available ALL THE TIME. He speaks various ways supported. Access made possible selecting right people working Microboard (a small group unpaid family friends supporting life choices). Without this his devices shut away cupboard staff roster suited rather than him needing it. And know as meeting friend weekly living Group Home every week new member doesn’t understand or use his communication styles unless asked where they are stored before. Before knowledge multi-modal communication used floundering health more hospital admissions uncontrolled seizures mystery illness unable move sit hot car summer vehicle bite pull hair break bones etc stopped now supported choice team learn be partners listen respond what saying. The proposed changes dangerous son NOT safe destined barely existing fed housed clothed participating full citizen Australia. THIS MODEL WILL COST MORE IN MEDICAL SYSTEM - WE KNOW BECAUSE BEEN THERE! it has been hard hear demonising children which also puts me in demonic category apparently sucking system dry fraudulent behaviours. I believe responsible steward government funds refused supports agencies don’t have skills support sensory and communication needs chagrin consider refusing their most excellent services with all due respect my son I’ve had benefit lovely young graduates visited homes many times beautiful will energy assist but simply not enough speech therapist strongly recommend another communication system once we’d
National Disability Insurance Scheme Amendment Bill
Submission: [2047]
introduced PODD to redacted . Not only does this demonstrate a lack of insight and professionalism by the person; my refusal to spend MORE FUNDS on YET ANOTHER SYSTEM – setting up A NEW system becomes another expensive item for NDIS funding. As seizures are now more controlled as result not being bored or working learning socialising doing regular activities etc., significantly less hospital admissions occur with support needed accordingly. can also tell us about health needs such when pain medication might be necessary preparing him stop breaking bones coming tonic/clonic seizures so forth This itself huge saving medical system Despite told lose ability transfer legs age continues transferring supporter environment wheelchair chair table safely When went year old classes special education school home town immediately made use hoist Luckily did attend mainstream schooling where continued moving body well requires hoist those rare times unwell unable move Another huge saving using two people help transfers plus equipment need NOT required most know level physical disability experienced should maintained hoist from age I implore you make changes which will push son back dark ages become unwell uncontrollable seizures again, physically reliant equips access voice communication devices partners relies stay safe autonomous independent others his voice contribute community volunteering work friend son brother uncle colleague continue lifelong learner join sports full citizen beautiful country He smart correctly wrote friends name…. (pronounced ) every single writes her incorrectly but got right first time he wrote name great sense humour kind brings out kindness of others valued respected friend and work colleague who is secret keeper they tell positively impacts mental health shown possible inclusion keen jumping life recently Neurologists explained seizure activity brain all the time
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2047
even though we can’t see the outward signs of them), is full of energy and is only restricted by those around him who (is part)ofour wonderful anda diverse community.
SincetheNDISwhichhasonlybeenashortfewyearsforusasweareinWestern Australiaandsomesomeofthelastwho werewhenoboardedwhevahavesomengritto get our teeth into create team support whowhere thereto learn, listenand act.AsIamnowolderhave developeda significant health condition I cannot go backtosupport asIdidbeforethen DIS.Anywayhes clear hedoesnt want his mum withhim more thantobe connected ashismumnotacarer.PLEASE OPPOSE THIS BILL. As you have read weworkhardformanyyearsspite lack supports.The NDIsapositive developmentfory son inimmediate moment somethingAustralians could be proud restwell knowledge that from birth to death there safety net should they ever need it.