National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2078

To the Committee Secretariat Regarding: National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026. Dear Sir or Madam, I am the mother of and the primary carer for a 23-year old woman who has had severe, complex disabilities and high medical needs since birth.

Functional Capacity

I support the concept of assessment for NIDS Supports as necessitated by Functional Capability; however consideration must be given towards fluctuating health-related disability conditions such that my child’s intractable epilepsy which is otherwise known as resistant medication does not improve over time resulting often times in frequent episodes where her capacity to interact engage function at reasonable levels are significantly reduced Likewise Cerebral Palsy does NOT improve with age muscles lose their strength effectiveness both externally internally leading more frequently choking increasing risks lung disease How someone’s functional capability should assessed must consider participants’ frequent fluctuations regression.

Unscheduled plan reviews on request Since our daughter was accepted into NDIA we have experienced helpful interactions whenever she allocated senior planner experienced requirements Whenever Planner did not seek comprehend functionality incapacities focused streamlining budget plans consistently underfunded early reassessment At most desperate escalation Minister of Disability averting being restricted bed due funding shortfalls To minimize unscheduled plan requests diligent thorough planning collaboration Participants uppermost get right first time.

Automatic plan renewals instead regular full reviews My daughter non-verbal Despite documented Guidelines Code communication rights communicate preferred mode interaction telephone impossible use For expediency efficiency staff chatted me twice tricked into a full plan reassessment from Check In 29 May 2026 Page |1

National Disability Insurance Scheme Amendment

Submission: [NDIS] Securing Future Generations Bill - 2078 Phone Conversation where new plan generated entirely cutting my daughter’s participation. Between October ‘25 – March’ ’26 confidence in action NDIS goals restored via teleconference communication directly女儿的参与。在10月到3月份期间，我女儿的信心恢复了行动她的NDS目标，并且我们对NDI的信任也得到了恢复。 通过一位资深规划师与我的女儿进行直接沟通的方式，在电话会议中她被看到、听到并尊重了我的女儿。” 相比之下，“当这位高级专员突然‘转岗至其他职位时”，另一位计划员将之前提交给更高一级官员的所有证据材料未经任何会面就发送给了该官员。“”“实施”的会议上再次见到那位计划者后发现错误并且修订了我女儿的方案。 自动续签工作如果从一开始就构建得适当的话将会起作用；但根据我们的生活经验来看这只有发生在了解残疾人独特挑战和亲自接触参与者的情况下才会发生。否则就会贬值残疾人的个人性。

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2078

Such decisions, made behind closed NDIA doors, send an unmistakable message to people with disabilities and those who care for and advocate for them: People with Disability just cost too much to care for properly.

Giving the NDIA legal power to reduce the amount of funding in any aspect of NDIS Supports just validates what the NDIA are doing regardless; the Principles enshrined in the Disability Act are being eroded already without any accountability.

Pricing, indexation, and plan management

I welcome the pricing and indexation of NDIS service provision! In the past 10 years the role of a support worker has changed from disdain to ‘easy money’. Now, anybody can be entrusted to be responsible for the most vulnerable of society. The NDIA publishes admirable and comprehensive guidelines in their High Intensity Skill Descriptors and NDIS Workforce Capability Framework. To date, after almost 18-months’ search I have yet to find a HIDPA service provider capable of delivering services complying with these standards. To provide for my daughter’s high intensity and complex support needs I have found the most reliable source in the private/sole trader workforce. It means I must take on responsibility to upskill ‘standard’ and unregistered support workers to the required competencies of providing HIDPA support. I must pay top-dollar for these sole traders who understand their worth. In contrast, I must accept substandard and often incompetent agency support workers who are paid the same price irrespective of whether they drive a Participant somewhere, or take them to the movies, or get run off their feet exhausted by high intensity support needs.

The NDIA are making no distinction between the quality and competency of support workers, indiscriminately driving up these salaries to consume more of the Participants’ dwindling funding for less valuable or appropriate services.