Daughter with intellectual disability and chromosomal abnormality faces increased isolation (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2093

Dear Senators, I am writing about the proposed changes to the NDIS.

I have a 19-year-old daughter with moderate intellectual disability and health and disability challenges due to rare chromosomal abnormality. Her challenges are enormous which makes my life hard as well.I love my daughter very much; i want her to have an regulara life possibleandtohave qualityoflife thatthe rest us takefor granted .

I havetoworkreduced hours becauselevelsupportherdaughter needs evencurrentlevelsupporthershe receives fromNDIS single parent constantly juggling caring son It’s job ndiaonly government body still considers unpaid parental supervision reasonable support adults.Even currentsystem had write federal MP appointment planner last year intervention told could be months without sufficient funds cover daughters therapies or community access After meeting funding increased half recommended specialists support daughter worry happen when longer care burden place on son exhaustion burnout myself meantime From experiencewithndislastyear resume antidepressant medication help cope Againworry all this even levels of NDIS get understand first hand how important is The gives me small breaks resetfrommycaring responsibilities means can continue caring working distressed though level autonomy than she was at school will not change foreseeable future things worried about proposals changes to NDIS:

  • That Minister power cut participants plans despite approved by NDIA;

National Disability Insurance Scheme Amendment

Submission: Securing the NDIS for Future Generations Bill 2026 Submission 2093

  • That the proposed $\text{cuts}$ of social community supports will shift responsibilities back onto families especially women making their lives harder when they often run empty;

The funding cuts increase physical mental health financial burdens exhaustively. carers, on already exhausted day: she is unable to live independently if these supports are cut; There was no adequate consultation regarding those affected by the proposed changes including participants carers & service providers. to consider the NDIS as welfare instead of supporting disabled individuals living within communities leading dignified independent lives.