Submission regarding the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission: [2101]

To whom it may concern,

As both a parent of an NDIS participant and as an independent disability support worker.

Concerning proposed changes under the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026:

I am deeply concerned about potential funding cuts that could reduce or remove our child’s access to essential services through the NDIS.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2101

and support essential to his development and wellbeing. Many parents of children with disabilities are placed in similar positions, forged forced reduce work hours or leave employment entirely inorder tcarefortheirchildren. TheNDIS gavemy childthe opportunityt access early intervention during themost critical developmental yearsofhis life.My greatest fear now isthatbecause mysongoprogressing well,hissupports may bereducedor removedentirely.Improvement should notbe viewedas evidence thatsupportsare no longerrequired.Inmany cases ,participantsaredoingwell preciselybecausetheyarerceivingconsistentappropriatesuppport.Removingthose supportsrisksundoingyears progressplacingchildrenfamiliesback into crisis .My sonisp proofthatearlyinterventionworks.Hestillrequiresongoingtherapyandsupportto continue developingtheskillsnecessarytonavigate schoolrelationshipsemotionalregulation, anda dailylife.Autismdoesnotdisappear becauseachildhasimprovedwith therapy.I amalsodeeplyconcernedaboutincreasing rhetoric surrounding“parental responsibility”in relationtodisabilitysupportsforeach. Whileparentsabsolutelyhave responsibilities toward theirchildren,dysabilitrelated careoftenextends farbeyondwhat isreasonablyexpecteda parentwithoutsupport.If fundingand supportswereducedunder thejustification “parentalresponsibility,” what practicalsupporthwill familiesreceive in return? Are parents expected toleave workforce entirel y ? Will adequate income suppor be provided toreplacelost employmentincome Current supp ort payments availabletocarers arealreadyfarbelowwhatis requiredfor familysto survive financially.Thes proposed changesriskforcing parentsparticularly mothersoutoftheworkforce inorder providefulltimecare fortheir disabled children.This directly contradictsbroader government messagingencouragingwork forceparticipationselfsufficiency andeconomic contribution throughemployment taxation.Personally ,I have never soughtfundingsupport worker myson as Irecognise his needsare differentthose many others with higher supports requirements,andiam lucky enough able workaroundhis therapies.However additional support something would haves considered future enable me treturnto full time employ ment.At present can only maintain workbecause havenuanouslyflexible working arrangements allowme

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2101

Many families are already experiencing significant burnout due to attending their children’s appointments and therapies without flexibility provided under current schemes. Parents with disabilities face emotional exhaustion, financial pressure, much stress will increase crisis presentations such as mental health deterioration among both carers & alike. Policymakers must approach these reforms empathetically understanding realities faced daily by disabled families.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2101

While I acknowledge there are providers and individuals who misuse the system, it is deeply unfair that genuine participants, families, and hardworking support workers are paying the price for failures in regulation and oversight. There will always be individuals who exploit systems, target unethical providers and systemic misuse - disabled children,families,and frontline workers who depend on these supports every day.