Complex PTSD diagnosis due to caring for child with complex needs (Family or carer experience)

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National Disability Insurance Scheme Amendment Bill

Submission 2143 This submission addresses proposed legislative changes to the NDIA Act. It highlights how cutting core supports will break down families, failing early intervention leads taxpayers paying astronomical OOHC bills.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2143

Feedback on the Proposed NDIS Amendments

  • The Risk of Redefined “Permanence”: Forcing families to exhaust every single theoretical “available” treatment before accessing or maintaining NDIS funding ignores regional shortages, waitlists, and out-of-pocket costs. It delays critical early intervention and puts more pressure back on the household.
  • Lack of Transparency: These changes have not been clearly communicated or co-designed with the families who will bear the brunt of the impact. Decisions are being made based on balancing spreadsheets rather than assessing human outcomes.

Conclusion

I urge the Senate Committee to reject amendments that restrict access to vital capacity-building and family supports. Cutting NDIS funding from vulnerable families is an economic illusion.When the NDIS fails an informal carer, the child protection system has to pick up the pieces—and the financial cost of raising a child with complex needs in state care is exponentially higherthan providing proactive, compassionate support to a family at home. Please protect the funding that allows parents to remain parents,rather than forcing us into positions of systemic collapse.