National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2154

Dear Senators, My name is Elyssa White, and I am writing to share my experience in the hope of improving the NDIS system for all disabled Australians. I was born on November 25th, 1970; however, due to an incurable blood disorder called Rickettsia Orientiae contracted while living in Sydney since December 3rd, 2018 until March 2nd, 2024 when diagnosed with significant permanent physical disabilities including cognitive impairments caused primarily from bedridden conditions lasting nearly four years despite best efforts at diagnosis through specialist haematologist Dr Jane Freeman’s examination conducted via the Cancer Clinic at Sydney Adventist Hospital where she works as a consultant hematologist. Despite this condition existing prior thereto, my application submitted under Section 2024 of the Act seeking support provided by specialists and general practitioners has been rejected without further explanation or appeal process initiated thus far. The current situation involves being passed between various ‘COS coordinators’ who are not providing any progress towards resolving these issues. Currently awaiting review assistance offered free-of-charge by Adrian O’Malley at Disability Advocacy Services. In light thereof several questions arise regarding how such systems operate:

• What qualifications do individuals possess responsible for assessing applicants? Is there central database tracking applicant information ensuring continuity within care delivery processes? How does communication occur amongst outsourced agencies involved handling sensitive data sharing concerns raised about lack coordination among entities managing patient records; do they have adequate oversight mechanisms established governing their operations; what specific skills qualify NDIA staff members like Joyce Collins to accurately assess complex cases similar mine? it appears involvement too many disjointed parties hinders effective service provision intended beneficiaries served thereby suggesting thorough reviews undertaken on behalf organizations administering these procedures ensure qualified accountability maintained whilst safeguarding those in need. I look forward your response addressing aforementioned matters publicly available consent granted.