National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2165 - Supplementary Submission
Hi,
I share my own experience as a participant. For the early intervention support has helped my child, who started speaking at 3.5 years for the first word. From no contacts and have mutism to can speak single sentence now. What important to me is, as a parent with disability, I don’t see I have a future. And with ndis supports to my child, I can feel I’m being supported as well, as my child has built some capacity and catching up his peers. But what my concerns are if they just tighten the eligibility without transparent assessment tools or criteria. My young child who is above 8 years old above age for the thriving kids would be removed from ndis. Then later I won’t have any supports or family members or my son to come and see me when I get older. To me is very important as I had a very traumatic childhood, and things happened to me is very difficult to tell, and it’s not media or news said so easy to be on ndis. It’s about very basic needs as human being. Because we already have disadvantages from society and we need the government supports to fill the gap between us and others. Especially many of us, participants have multiple roles and are parents of children as well. We are not and we can’t simply just sitting at home, waiting for the support workers to come and to start the day. We would need to build some independence and capacity around the house. That’s what I’m and I believe most of participants working on. Even with three steps forward and one step back we are still making progress and I can promise there is never been one single day wasted or any day I don’t work hard (towards my goals)
I take it as a big responsibility the funding we received the tax payers money. That’s one of my motivations daily, to improve, to do better. I have the potential goal that the funding we used are all like “borrowed”. One day we must be able to work or in someway to earn the same value of money back. We either donate to charity or return it back to ndis.
We never had the mindset of taking the funding as granted or would just spend with planning. However the issues are there are many providers and frauds. The NDIS commissioner very rare to take action and most of time would just done nothing. In late 2023 there was a provider took my child’s whole plan funding and also posted my privacy to social media. NDIS commissioner had done nothing but issued the registration and let the provider became a registered provider. This is just one of the examples.
I also had providers who bought $150-250 toys for my Child during the shifts and i asked them to return them and they just billed under the funding and even bought more toys.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2165 - Supplementary Submission
And I rejected the invoices from plan manager, the provider made complaints to NDIS commissioner, it actually resulted I received a warning as participants parent. Because I’m in the scheme and the commissioner is able to obtain my details. So the NDIS commissioner have given the providers all green lights to just do whatever they want to do. But in the end just said it was all spent on participants or participants mis used funding.
I also had providers sent cleaners but without experience and training lit my house to fire. I had providers who damaged by food processor and doors during shifts by hiring some third party contractors but would only repair under ndis funding. I was threatened if I said the truth I would get in trouble. But even I made complaints to commissioners they don’t really care or do anything. Would only say acknowledgment.
The current act can’t amend just from one single side by limiting participants, but letting providers do whatever. Without any third party organisation for feedback and resolutions. We are also humans even we have disability, it seems our voice never be heard. And even with this submission. I’ve been thinking a lot, how do I write it, from a participant’s perspective, or from the legal perspective. I’ve decided to share from a participant’s true experience.
It’s important to have ndis in our life to support our family. I don’t agree with the proposed bill as it didn’t consider participants human rights need, and a federal act also shouldn’t be just passed in such a rush way, later causing more harm to participants family members and even more issues and introduce to this new bill.
I keep our name as private and allow to public this document. This submission is filed on behalf of my child, our carers. And I urge the committee to consider the damage/consequences would caused by this new bill. It is against basic human rights needs and if this bill would pass, it would damage Australia’s reputation in the world as well. The damage/cost is life, risks of harm, is our child’s future and uncertainty to our daily supports and risks of left in the middle of nowhere, without any practical solutions.