National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

Why am I requesting the submission be changed?

In regards to removal of support co-ordination, while I agree not everyone needs it, for some of us it is absolutely essential. I have tried to oversee my own NDIS but even with help it was far too much and nearly reached mental burnout yet again; it’s important because:

• When someone decides what you do without considering your actual capabilities, you end up receiving inadequate assistance; this happens during periods where others perceive capabilities based on how they interact or speak rather than understanding limitations due to physical fatigue being extremely limited as well as needing adaptive devices such as shower chairs etc., despite appearing capable externally. The role played differently from other workers: My coordinator stays consistent over time whereas support staff frequently change roles which can lead me feeling unsupported at times when needed most significantly impacting recovery after an incident involving extreme accusations made under NDIS leading towards suicidal distress that took years before fully recovering emotionally & mentally. My coordinator has been a constant advocate who knows all about my abilities strengths weaknesses including defending against inflated expectations by explaining upfront she appears more competent in reality. This situation occurred roughly three years ago now wherein people misjudged my capacity resulting into severe emotional trauma requiring prolonged psychological intervention lasting almost two full years still struggling today. Knowing her presence provides assurance regarding accurate representation given tendency toward masking true condition especially vulnerable moments ensuring everyone involved aligns efforts not just within NDIS also across specialists avoiding duplication of services while promoting teamwork among professionals working together harmoniously. She helps identify necessary resources and ensures adherence to only those actually required according to guidelines provided initially upon enrollment onto the scheme; it’s important because: she discourages unnecessary applications even if successful, focusing instead solely on genuine needs supported financially through tax payer funds, maintaining alignment with personal preferences expressed early on during initial registration process. When faced reluctance accepting assistance due to perceived necessity being unclear or insufficiently beneficial for overall well-being such as group activities enhancing social interaction reducing depression symptoms thereby decreasing reliance medications psychiatric support hospitalizations etc., having this person present offers invaluable guidance making it easier accept needed care ultimately improving quality life experience.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

few years for pain because mentally I can manage it better, and I can actually say I have friends & a place I feel I belong. I really can’t describe just how essential my co-ordinator is for me. Many are not tasks that a support worker can carry; they simply don’t have training knowledge qualifications, or many years experience behind them.As for financial cuts… For me this means reduction community groups activities do these been essential helping even friend They’ve also been essentialmentalhealth in lessening deep depths depression would have Have look forward rather than life filled only medappointments managing health It mean reduced support As amount cover needs but mental physically couldn’t handle anymore currently get Support people who prevent house clutter hoarder situation When first started on NDIS room inaccessible Now clear use multi-purpose area craft home physical therapy need carers stay over Lounge dining frequently builds up from coming going everyday activities between mental &physical health overwhelmed melt down Workers help to clear with help reach meltdown point often know alone Outside of home workers help challenges Grocery shopping stuck supermarket hours With support decision overspend indulgence high low shelves leave in pain lifting items heavy bag bottles weight Medical appointments both getting from appointment itself rarely remember told wanted ask instructions given etc On top athome outofhomesupport cleaner once week personalcarer shower Which cancel knowing unit become unhygienic quickly especially bathroom Do weekly personalcarer full shower wash hair properly instead quick splash without proper smell wouldn’t want leave house embarrassment Canceling inhomesuppor place gradually fill again watch my mental decline Out homehelp groceryshopping medicalappointment lack specialist support Group activities highlight notmedicalorrelated

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

where I can just be welcomed as I am, know I have support if needed but otherwise I can just be, make friends, enjoy an activity…

Already I have seen decline in my health as various supports have been denied, which has in turn created a higher cost for NDIS. Ie., or regarding my feet & ankles, othotics on their own isn’t suitable If they are put to the correction required don’t have strength connective tissues not matter building up muscle strength), stop self from rolling ankle opposite way so they must be made slight less what actually need To then achieve do need add supportive orthotic runners them These much more expensive than able Kmart grab any runners There afford disability pension NDIs initially recognised it package need now will cover runners Podiatrist Orthotist cannot give full correction knowing result further injuries This means left choice upgrade AFO’s These more expensive than + runners also physical abilities decondition relying AFO’s support Time out home before after putting them injury condition even bed lax wont hold place without twisted sprained strained etc At same time there splint would greatly improve independence ie silver ring splints fingers Why silver ring splints oval ’s plastic allow multiple rings finger especially smaller hands Even average sized hands using multiple 8’s usually pinch gradually break down skin Silver ring splints allow individual finger without pinching breaking of skin Was able get silver ring splints each hand before stopped covering Just those alone enabled push lift button without injuring cut meat when eating can describe embarrassing needing Dad cut food restaurant but myself hyper-extending point injury Can continue card making crafts Without all these supports I back where was admitted hospital times year uncontrolled pain that left me bedridden unable turn in let bathroom Would admit ED frequent IV hydration constantly passing out My body seem to hold adequate hydration trying manage everything self The NDIS has supported reached relative stability though cuts already made thus far To go regular admissions mental melt downs breakdown suicidal depression no life Family help unlike

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

My parents are now 68yrs and 75ysrds both have significant health issues My siblings either work full time Have their own mental health needs Or Live overseas I am fully dependent On The support Of ndis To help manage my non medical disability Needs If the supports I currently receive have to Be ceased due to cuts to my plan i honestly don’t Know how will able Manage again already have choose between groceries And medications So Don’t have Money Own try Use Cover those things.

My suggestion reform is make some adaptions Many places still add extra fees For Those on nDis won’t always name It as That, they know not meant Do this instead say there Is A100% markup fee any items purchase outside Specific clinic These should be made illegal Those shouldn’t charged higher amount swindle tax dollars There also room explain why specific method treatment or equipment being requested so ability point out when option would default actually cost much more money than recommended Co-ordinators Shouldn’t just anyone Not require certain level training but set amount years experience within Mental Health industry not Just Support worker various fields criteria meet Providers properly regulated When employed means person Dependent them Isn’t acceptable having a company tell someone who requires 24/7 support sorry can find Someone take shift leaving without support & potentially dying because isn’t there replace breathing tube night Help get bathroom clean after accident eat hospital wouldn’t allowed not staff called sick call in Staff agency pool cover even costs same for an NDIS Agency accepted client results no longer accepting clients needs something else arranged Respite audited Even changes were only lived others could access heard situations where grossly abused People justify what spent money They shouldn’t use to pay off household bills Partner come respite their ‘support worker’ it’s meant from those live with claim support wages return Also restrictions Where Items purchased valid justification Auditing Why? Know someone was allowed Use some of her funding Adairs apparently they sold very specific waterproof bedding skin tolerated Then proceeded spend that Money decorative doona cover sets But wasn’t checked ensure Spent on

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

was meant for. There does need to room fork purchasing from places that aren’t always allowed, sometimes it is accurate thats its the only place to get specific item from… but it should always be checked tha t was the item purchased&ifnot then person shou ld have tot reimburse NDISfor its.

Ther also needs to bes rules in place sos people cant spend on medical items thatscan b e deemed as needed foremthembuthave built up excess&sothenonsell it&use thate moneyon their own wants.

Support workersshould be separate fr omthes providers of services ie cleaning personal care support co ordination Eachof those service s should berequiredtosubmit amonthly checklist o fservicesin accordance oft he other serv ice has said theyve provided If client saysthey havent receivedthose servic es it shouldb ei nvestigatedby that worker to see if there just been a misunderstanding orift hatservice reallyhasntbeenprovided It would help stopproviders fromgetting away with invoicing fors ervices not renderedor overcharging .

T here are so manyother ways than NDIS could save somuchmoney without making cuts te ssentialservices. This schemewas promisedt change liveso fthose livingwith disabilities &making isos wecould access community, h ave equalaccess Icant describethedifficultit hastobe had given somethingthento have rippedaway To continue decrease ser vicesis sign your name agreeing t osome whithdisabilities being made fend for themself again live unhygienic squa lor go back isolatedgo back mental health hospital sevicesbeingover inundated w iththose whohavongoing life long chronicmental physicalhealth conditions ratherthan acute needs Australia need ask itself how want seen How treat our people Do mirror US on its greed and disregard anyonewhos part wealthy? Maintain former status having best healthcare world wide Known caring allpeople ensuring equalityequal acces What man don realize smanyp eopleon disability pension&NDIS enough support can then return work Even 2 days week still means theyre also paying tax dollars Is better themnot ablework atall fully dependent government assistance Also there menial jobs peopl disabilitie d be doing earn sort wage Shelling envelopes sorting recycling forth Therejobs thatcanw ork those withd isability whether ment alorphysical justnt availablepresent If full wageatleast somethingsame time saves company potentially needing payfull wages afford machine do itthem.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 22

The NDIS needs a committee of participants who help advise on ideas to save. It’s the participants who get a birdseye view of the many problems where there’s budget blow outs that group aren’t necessary, budget blowouts that just aren’t necessary; also shortfalls in services or even over catering of services; services which could be cut down without affecting quality service delivery. The committee should consist half chosen from within NDIS itself with another half randomly selected among all registered users. itself selects one-half while other members come through random selection process. to change every year because once you’re part of this group your role shifts beyond participant status. you’ll bring different perspectives into decision-making table but these can become conditioned if same individuals serve too long period. can retain beneficial contributors longer than two years maximum term limit per person. others shouldn’t exceed their tenure more than twice unless they’re offered permanent roles outside said committee structure. is very lengthy and I wrote it myself so some things are repeated or explained overly sorry. We need fresh faces regularly rotate onto such committees. I really hope Australia takes good look at its direction as US healthcare model isn’t something we take pride nor hybrid AU/US system either. doesn’t want us here, yet we built our nation on those principles showing everyone has fair access to essential needs regardless adversity faced by individual people who rise up making true difference despite challenges overcome. don’t let world see a carbon copy country instead show what makes Australia unique - someone standing alone for right fairness justice truth, one who doesn’t abandon anyone just due bad luck circumstances recognizing human worth still counted in society contributing positively towards progress of entire community not stepping aside from others raising themselves higher.