National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2201
Submission Inquiry: The National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
The ndis means that I get to safely survive through the day, and set goals for my future and have support to reach those goals. Before ndis, the future and goals, getting out of bed, none of that was even possible. Having ndis support means I have support eating, showering, getting out of bed. Living a life, though limited, being able to live a little and not be stuck in bed alone everyday. It means I get to do things able bodied people take for granted everyday, like be pushed in my wheelchair to the park, go to the shops and have help from physio with pain and stretches and exercises. For me going to park is not a daily thing, it is an extraordinary privilege. People cannot understand nor comprehend how special the small things we achieve are for us. All activities and home functioning, getting out of bed, showering, all of which I cannot do on my own.
The ndis has allowed my family to go back to work and not stay home with me 24/7. The ndis has allowed me to get help with doing the things I love like painting and listening to music concerts and help accessing vital supports like a physio and psychologist. On top of that, thanks to ndis support, I have been able to do my small art business, sell my paintings and give back to the community by making an income and paying taxes. Without the ndis I would not be able to paint and do my art safely as I need physical and mental supports. It would mean I could not financially contribute to society.
I feel terrified about the proposed NDIS act. I do not feel anything has been explained clearly to me. The news has made me cry everyday, I experience a lot of ableism and the comments on posts about the scheme are horrible and mean. I am scared. I do not feel I am treated as a human most of the time by society. I am absolutely terrified that I will lose my support team. It has taken me years to get a stable team that really is there to support me and cares about my needs. I only have small businesses who help me and they care about me 100% and put in their all. I have been abused in the past by big corporations who I was just a “number” too. They didn’t know who I was as a person and they did not care about me or my wellbeing at all. I felt I was mistreated. I have finally reached a place where every support I have is working and is caring and always comes to work and always supports me. The idea of losing my support teams because they are small businesses is absolutely terrifying. I have heard news that there will be no more small businesses allowed and I will lose all my support team. I do NOT feel comfortable having everyone else each day in the house, showering me and touching me. I do not trust big corporations from terrible experiences and I do NOT feel safe with those people who clearly do not care about my health wellbeing or happiness. Everyone in my team understands my disabilities and needs, and go above and beyond for me. It is terrifying to me that I will lose all sense of humanity and my support team who have helped me come so far from where I was before. From being bed ridden to having a small art business and having a purpose to life.
Having no ndis means for me, being completely bed ridden. It means I wont have the supports to
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2201
function and do “normal daily activities”. Before ndis I was completely bed bound, completely underweight, unable to shower or bath without supports leaving my hygiene to be extremely bad and had not much support to eat drink and help me do anything. My single mother tried everything she could but could not shower me and carry me and look after me. Losing the ndis would also mean my mum could not work and would have to look after me and stay home. It means we could not financially survive. We are already struggling with the cost of living and medications and appointments. We are barely getting by.
If my social and community supports were reduced I probably wouldn’t have any access to society. My mum struggles with chronic back pain and cannot push me in my wheelchair properly. She cannot lift the wheelchair into the car for travel either. We have stairs at the front of my house and she cannot lift the wheelchair down them. I would be mostly alone and isolated. It is depressing and I cannot cope going back to being alone bed ridden everyday. I wouldn’t have access to the community and to art and to meeting people. That is no life. Without NDIS supports I wouldn’t be able to leave my house. I wouldn’t be able to go to the shops or the park of the museum. I love art and music and what is the point of living when I cannot experience society. Being able to go on the rare occasion to see art exhibitions and live music, those are the things I treasure. Those are the things I am staying alive for.
If my capacity supports were reduced my life would be in danger. If I didn’t have access I would be rotting away in bed and forgotten by society. No one cares about disabled people. No one cares about me. I have been used and abused in society every day on the street spoken to horribly because I am in a wheelchair or because I cannot act “normal”. Life is not made for us, and the world is so inaccessible. I would end my own life because it is not worth living.