Terrified of losing support team and sense of humanity (Participant experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission Inquiry: The National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

The nolis means that I get to safely survive through the day, and set goals for my future and have support to reach those goals. Before nolis, the future and goals, getting out of bed, none of that was even possible. Having nolis support means I have support eating, showering, getting out of bed. Living a life, though limited, being able to live a little and not be stuck in bed alone everyday. it means I get to do things able bodied people take for granted every day like be pushed in my wheelchair to the park go to shops with help physio pain stretches exercises For going parks is daily thing it extraordinary privilege People cannot understand nor comprehend how special small we achieve are us All activities home functioning getting out of bed shower all which on own. The ndis has allowed family back work stay me 7 days week ndis helped doing love painting listening music concerts access vital supports physio psychologist On top thanks ndis support been art business sell paintings give community income taxes Without would paint safe need physical mental supports mean could financially contribute society.I feel terrified about proposed NDIS act Do anything explained clearly news made cry everyday experience lot ableism comments posts scheme horrible mean scared Do treated human most time by society absolutely terrified lose team taken years stable really there support needs only small businesses who care put their all Abused past big corporations number too They didn’t know person cared wellbeing at felt mistreated Finally reached place where every working caring always comes works supports idea losing teams because they small businesses terrifying Heard will no more small businesses allow lose all support team DO NOT comfortable having someone random house showering touching trust from terrible experiences DO NOT feel safe those people clear not care health happiness Everyone understands disabilities and needs above beyond before From being bed ridden have a small art business purpose life.Having nolis means completely bed riden wont have the to

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2201 function and do “normal daily activities”. Before ndis I was completely bed bound, completely underweight, able unable shower bath without supports leaving hygiene extremely bad do anything My single mother tried everything she could but could not shower carry look after me Losing nolis also mean mum work stay home means we financially survive struggling cost of medications appointments barely getting by. social community supports if reduced probably wouldn’t any access society Mum struggles chronic back pain push properly She lift wheel chair travel either stairs front house can’t down them mostly alone isolated depressing cope going back being alone bed ridden every day couldn’t experience art meeting people That no life Without NDIS supports leave house shops park museum love music point when experiencing society rare occasion see exhibitions live music those things staying alive for capacity reduces life danger didn’t have access rotting away in bed forgotten society cares disabled No one about me used abused everyday street spoken horribly wheelchair act normal Life made world inaccessible would end own because it is worth living.