National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2236

My name is i was diagnosed with multiple sclerosis at Westmead hospital in 2014 I was nursing at the time 38yrs in fact but unfortunatly my career was cut sholi due to my ve1y low immune system and Covid I was given the oppotunity to go onto the NDIS and stait therapies and be a pait of your home care a reputable registered provider for assistance with daily tasks. I also through alot of painstaking 5 yrs of knockbacks have been able to secure a SDA prope1iy my forever home after been with not 1 but 2 unregistered SDA providers which cost me alot of money so I get were the shonkiness comes in and the need to real it in. Im now in progressive MS wheelchair bound and mainly in bed or lounge room in my chair. Im only telling a snippet of my daily life my husband is my infonnal suppo1t and I rely on him alot oh and just recently they cut 75% of my plan without consultation so i am no not able to go to hydrotherapy and only 12 suppo1t coordination hours from 48hrs per year.

I do hope you understand from a paiticipants point of view and the stress we are under and what will happen to people like us.

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