Impact of NDIS cuts on autistic individuals and their families (Family or carer experience)

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National Disability Insurance Scheme Amendment Bill

Submission: [2263]

Hello, mymame is redactedredacted s47A - Business affairs an a year-old woman on he Autism Specreum an I am asking for this bill te scrapped. My brothee i s1-year-old man also nhe Autism Spectrum Our Mum has arare genetic muscle disorder called Central Core Disease My brorher was diagnosed at age 18,and I was diagnosed th following year when I was 18.My Mmu uses walker wheelchair.All three of us NDIS.I studying bachelo psychological sciences began in 021 at age 5and learnt drive that ye.Thanks suppor from NDIS(my Mu) have been able keep studing obtain full licence.My brother now learning driv last year moved home where thee o us our cats were renting.Brother spent years childhood teens right up when gained access NDIS largely unable leave room.He go out rarely myself mum.If NDIS removes or reduces (has already prior legislation) individuals funding to acces community then my brother and risk being isolated again. I wish be clear proud self brother achievements.However,now will explain why cuts affect many others autism spectrum other disabilities.We need help maintain gains fear what removing me,broth autistic people off the NDIS could result do not see how continue study can drive but get exhausted easily overwhelm sensory overload severe anxiety.already require extensions extra time break down tasks.Every illness(cold flu low iron etc either drop must apply special circumstances submit assignments later than long two-week which means reduced grades. Brother would no longer support workers take gym both further isolated.Afraid we

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2263

will lose the gains towards independence we have already achieved. I already had my travel allowance removed in my last plan because they told me it was unnecessary since I drive. NDIS ignored occupational therapists’ written recommendations instead relying solely on an end-of-report box indicating whether someone drives, making it difficult even though my mum has been supporting us through challenging processes like these. I fear autistic individuals’ mental health could deteriorate if this ableist legislation passes; increased suicides/murder-suicides among disabled communities seem inevitable without reforms. as an individual who communicates effectively about autism issues to others within our community, I feel government policies aim at punishing those receiving assistance under NDLS due to neurotypical communication standards being applied universally across all people with disabilities? The media’s role seems complicit too, amplifying negative narratives against autistics while ignoring valid concerns raised regarding fairness and equity of access to services provided via NDIS program; it takes immense courage from myself & siblings alike to stand up against such injustices affecting verbal/non-verbal Autistic persons regardless age group involved here today! However when Mark Butler announced shocking bill details during press conference yesterday evening left tears streaming down my face as disbelief washed over me realizing Labor Government’s intention behind introducing said measure which singles out entire population segment labeled drain society despite clear evidence showing otherwise Here is just SOME problems associated with proposed changes impacting upon National Disability Insurance Scheme (NDIS) framework: • The bill states that a politician can override plans recommended by specialists including Occupational Therapists Psychologists etc., does not make sense Mr. Butler or any other minister are not my

National Disability Insurance Scheme Amendment Submission

Submission Number:

Section Heading

doctors/specialists/allied health, to violating both privacy rights making mockery of professionals who specialise in disability sector. • Thriving Kids —“Thriving model risky leans families”(Australian Association Psychologists Inc.,) (https://www.aapi.org.au/common/Uploaded%20files/AAPi/260204_ThrivingKidsmodelisriskyanleansonfamilies.pdf).

  1. For current future children autistic -you DO NOT stop being after age nine.The teenage years especially difficult traverse.From what can understand provides courses strategies parenting.Parents reeling trying accommodate,understand emotionally their autistic children.Putting blame so-called responsibility these highly stressed parents will change facts most if not all still require OTS and specialised psychological supports.
  2. When you state low moderate needs or use incorrect terms like “mild autism”, are missing critical information such girls women mask more often burnout easily – this is my lived experience many other on spectrum for example yellow ladybugs (an advocacy/support organisation Autistic girls see: https://www.yellowladybugs.com.au/About) show universal experiences too.Level 1 persons need support Level 3 the most! Must support kids Spectrum.No discrimination.There articles stories about fears around support needs Mr Butler Labor have acknowledged fluctuating that include myself.A small

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2263

sample of articles/references: [https://www.abc.net.au/news/2026-04-12/moderate- children-at-risk-under-thriving-kids-ndis/106385602](https://www.abc.net.au/news/2026-04-12/moderate- children-at-risk-under-thriving-kids-ndis/106385602) [https://www.theguardian.com/australia-news/2026/apr/23/wed-be-on-our-own- families-face-being-thousands-of-dollars-worse-off-as-labor-cuts-ndis-lifeline](https://www. guardian.com/australia-news/2026/apr/23/wed-be-on-our-own-families-face-being-thousan ds-of-dollars-worse-off-as-labor-cuts-ndis-lifeline) https://cyda.org.au/a-major-red-flag-four-in-five-warn-thriving-kids-rollout-is-too-rushed-cyda-survey-finds/ Thriving kids fails to acknowledge masking - where an autistic person may appear or at least attempt

to look in public like a neurotypical. Girls and women are more likely to do this, qualities of being female, of quiet shy polite seem like they “coping” meet approval but inside we drown – I am still learning when maskin gand I’m critical myself doing fear thriving is excuse ignore girls’ experiences Autistic .4.Thriv ing Kids fail ackowledge parents carers commonly female whom government claim want support getting back work equal pay/super these slashes would opposite These already sacrificing time everything can burn out sadly there has been murder suicides prove happens cuts NDIS plans occur Offering extra classes good theory OT psychology speech therapy integral lifelong needed must acknowledge often asked tips aids for their consequently why support workers important take pressure burnt-out parents Thriving also puts burden teachers schools Teachers overworked underpaid struggle supporting disabled

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2263

children already. An autistic child often struggles with the school system and often can’t again lead more pressure on parents carers. • Trying “every” therapy - This does not make sense at all. • Many treatments/therapies/medications exist are too expensive even if an disabled person comes from a wealthy background; they’re costly; • How people rural areas supposed get treatment doesn’t near them? Telehealth appointments aren’t always appropriate or don’t every option available. They afford travel these places pay? treatments?) • Some treatments/therapies/medications may inappropriate For example ABA(Applied Behaviour Analysis)“)therapy” Autistic community gay conversion therapy Why should any autistic child adult forced punished act neurotypical?” • People had their plans slashed last year before this bill introduced now facing further cuts-50% cut social supports critical area during COVID lockdowns everyone got sample what it like disabled persons. 1 You cannot simply just leave home, You can access public building/shopping centre/park etc go in safe mental health issues skyrocketed Is really government wants remember segregating disabled persons Final comments statement I know many others stated reiterate agree fraud exists mainly providers overcharging NDIS These parameters

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2263

can were set by the government. However, stating it is widespread is false when there are similar (and even worse) levels of fraud in Medicare and in Defence spending is just malicious. This bill does not fix any of the actual fraud but instead punishes and discriminated against the disabled community. Also, I will ask why is the government giving two weeks Australian Disability community examine this legislation respond? you elected represent People – appoint yourself change someone’s NDIS plan at will example authoritarianism certainly Democratic. it noted every $1 put into over $2 returned economy- economist sounds good investment me- government allowed Autistic community denigrated scapegoated empowered government media public feel free now belittle attack those Autism Spectrum.-media giants country lot answer promote distorted stories about people NDIS. this bill blatant ableist stop ethical.