National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2294 My name is [redacted]. I am an NDIS participant myself and the parent of a child with profound disability and extremely high support needs. I am writing-to share my concerns about the direction of recent NDIS reforms and the impact they may have on families like mine. My son has Autism Spectrum Disorder Level 3, ADHD, OCD, Pica, intellectual impairment, a tic disorder and significant behavioural support needs. He is non-verbal, supports every member of our household. Despite extensive evidence from specialists, therapists, schools and support providers, we continue to encounter significant barriers when trying to access appropriate supports. One despite his behaviour. His support needs affect every member of our household. of traditional assessment processes. The most frustrating issues are functional impairment, risk and real-world support needs should be given greater weight than rigid assessment criteria. to continually gather evidence, challenge decisions and navigate increasingly complex systems. The time spent advocating, attending appointments, chasing reports and responding to administrative requirements takes time away from caring for our children and supporting our families. another issue is accountability. Participants are expected to provide extensive evidence to justify supports yet families can find themselves paying for reports assessments services that do not always translate into meaningful outcomes When providers fail maintain documentation or fail properly record incidents it often participants suffer consequences.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2294 The impact of disability extends well beyond the participant. My other children have been affected by the demands of caring for their brother. Family activities are often restricted. Siblings frequently miss out on opportunities that other children take for granted. Carers experience significant stress, exhaustion and burnout. Any reform of the NDIS must recognise that supporting a participant also means supporting the family and informal carers who make that support possible.