National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2312

Dear committee, I ask the government to withdraw this bill.

I am a disabled mother to a disabled child. Both my child and I are diagnosed Autistic (Level 2) and ADHD Combined Type (severe). We both received our diagnosis this year. Myself at 31 years old, my daughter at four and half. Access to the NDIS is essential for providing my daughter with the therapies she needs, to maintain her connection to community and to allow her to grow into a happy, healthy adult. As a late-diagnosed Autistic woman, I can trace these experiences back to being an unsupported neurodivergent child\tteenager and adult:

• Anxiety
• Depression
• Disorder eating
• Suicidal ideation Under achievement at schoolBullyingDelayed access to medical careDelayed access to mental health carePoor physical healthSexual assaultSocial isolation As you can imagine, any parent would want a different trajectory for their child. We have poured thousands of dollars inti assessments already –to provide my child wit information about her unique \tnurodiverget brain AND t secure her acces accommodaions supports including NDIS funding.I’m incredibly concerned by the push make sweeping changes across systems level targeting groups people age location or diognosis to make changes instead making measured assessmen case-by-case basis we see evidence occurring in ‘Thriving Kids’ proposal which sent shockwaves through communit So many kids will potentially be left behind by these changes families are understandably very worried what come You cannot look one group peop assume there right decision entire group.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2312

I’m also a primary school teacher. I’ve taught across years three through six students over six years, always within one’s own classroom and full-time teaching duties.I’ve felt this workload.It’s impossible to cater adequately towards children with special educational requirements when there is an average of twenty-eight-to-thirty-three kids per class.(Yes,I had thirty-three Year Six pupils during their first academic term.)I have encountered upper-primary aged learners who cannot read.They struggle sitting at desks or maintaining friendships.Children would escape from classrooms due to overwhelming sensory sensitivities.Chairs were thrown,windows broken,and entire rooms destroyed after training sessions.Written numerous plans secured high levels funding attended countless parent meetings.Loved all those children but was not enough.Early intervention could make such significant differences to these young people.I am deeply concerned that tightening access will lead worse outcomes for both my child in her schooling as well as home life.My personal daughter has challenged me more than anything else on earth.She requires constant supervision because she lacks safety awareness,often escaping into roads,cars parks,lakes,ponds,rivers attempting touch ovens jumping off cabinets.Our house is fully safeguarded yet I can’t raise the security locks any higher.She sleeps beside us so we know if she moves around our living space preventing accidental exits out front door again.Her needs coregulation which feels exhausting;she must never be left alone.

Thankfully,she now sleeps through most nights still waking every hour between six months old and three times a night until one year old.Still needing continuous physical contact before falling asleep.Observe other four-and-a-half-year-olds’ behaviors how they act.Their parents are experiencing vastly different lives compared with mine.Don’t tell me try harder already doing best possible job currently.Timeframes responding requests further information have become increasingly tight.Experience residing regional Victoria getting GP appointment takes five-to-six weeks.Getting into

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2312

specialists (like paediatricians, psychologists, psychiatrists, surgeons) takes months to years. Getting an appointment with an allied health team that you have established care with can take weeks. Finding a new allied health professional can take months to years. My daughter has been waitlisted for an Occupational Therapist and psychologist for six months, with no indication we will be seen anytime soon. Some of our local Occupational Therapists, Speechies, Psychologists, etc., have closed their waiting lists because the demands exceed the number of individuals they’ll ever be able to serve. When a plan is reviewed and more evidence is asked for, it can take months even secure an appointment This puts families into significant distressing thinking child or loved one’s plan going ’cut” because cannot access support & care. I’m concerned also about participant engagement rules As Autistic ADHD Hard Hearing person phone calls difficult me Coupled having very limited access childcare For child finds phone calls distressed due demand avoidance makes extremely hard pick up calls limit notice Increasingly call made from private numbers No messages left There way effectively screen who calling And text message alert sometimes arrives after actual phone call was made When stay family live rurally service intermittent I’m concern about families do rural remote areas intermitent access phone internet location I’’m also concerned there may overlap NDIS participants socio economically vulnerable populations Those without ongoing access phone service Internet printers scanners Participants unhoused insecure housed The reality applying maintaining contact comes at signifcant time energy cost my family know not alone Concerned changes how why plans review harmful community My own capacity as Autistic fluctuates considerably Currently burnout higher than ever hopeful with building supports access daily living eventually recover burnout Then needs change again In times crisis need quickly efficient fair Participants their families feel comfortable saying this isn’t right me fear funding cut.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2312

I’m seriously concerned about this bill. Not only for its impact on my own family, but how it will change our society. I’m worried about the potential loss of life. Of family breakdown. Of cleaner: cleaner: poorer health outcomes for disabled children and adults.It deepsadderndy saddens me that wewould abandoabandon nthe most vulnerablesinour societysociety. Can yyou imagine explaining toyour childwhytheir therapistshave been taken away?To yourloved one, you can no longer access theriir communityand must live inpainful isolation? And pleseconsider allthemissingsubmissions – those whoaremost vulnerable,wilnotbe givena voice.You will notread their submissions.They are nor represented in anything you’ll read.Please don’t forget them. Please,ples consider thvery real an very human implications. Ourchildrendeserve a better world.