Impact of NDIS changes on autistic child's social participation and mental health (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2325

Dear Sir/Madam, I am emailing to oppose the changes to the NDIS scheme and to outline some of the impacts on my family. Amending Access and planning arrangements including defining functional capacity directly affects me personally; it highlights damage these proposed amendments could cause in terms of support services provided under the NDIS plan tailored specifically according to individual child’s varying degrees, high-level care requirements that cannot possibly meet simultaneously due to multiple disabilities affecting different parts within a single person with autism spectrum disorder profile early childhood onset psychosis requiring psychosocial disability supports through self-managed core funding agency managed Capacity Building. The issues opposing are:

  • Self-management ensuring workers don’t need registration;
  • The reduction from social community participation by half;
  • Functional capacity test future reassessment everyone involved;
  • Insecurity over plans & their funding security; Automated decisions algorithms without individual appeal; Schedule one. It is impossible define which section mind body affected specific disability when dealing multi-disability individuals as shown recent assessment denied required supports justified inability independently state evidence supporting needs arise solely based particular condition. This makes each disability affect entire person whole being who they are needing comprehensive support not just limbs but overall development mental health reducing significantly rendering almost completely housebound unable participate fully engage socially or educationally resulting regression progress made previous six years. Social Community Supports My son deemed Education Department writing unable attend school home schooling requires significant levels assistance mainly at-home and community settings since commencement NDSS has enabled substantial improvement joining regular groups week past term Support Worker involvement allowed join homeschooling group making friends age peers. However in most recent plan review reduced 2 hours per week under Increased Social Community Participation capacity building forced further seclusion provided only two fortnightly hours for a support worker to assist participating these groups no transport funding proposed changes reduce this another fifty percent across board will render my child unable leave the house become totally isolated diminish volunteering employment opportunities leading devastating psychological impacts family including determining best interests exercising choice control growth educational rights upheld by NDIS. The right of children aged twelve enter communities actively engaging supported necessary otherwise cannot leave house. Just before current plan began, my son earned pocket money doing basic odd jobs level with support workers involved throughout processes planning advertising conversing organizing completing invoicing budgeting great initiative real progress enabling child’s capacities dropped if government imposes cut social participation time required one hour weekly core half an hour travel on foot without transportation acknowledged need adequate. NDIS personnel are not medically qualified make definitive answer whether all appropriate treatments trialled effective each nor decide trial every medication they feel may help This amendment encourages pseudo doctors judgement calls medical other treatment use first quite concerning considering impact decision-making process could have detrimental effects individual child’s health care needs.

National Disability Insurance Scheme Amendment

Submission: Securing NDIS for Future Generations Bill 2026 - Submission No.

child needed to be medicated to the extreme that he was on maximum dose antipsychotics function In NDIS changes then used supports case make progress currently using social community Allied health groups no longer He housebound With assists increasing his successful engaged purposeful contributing life 4 My son relies heavily Supports made huge gains with these however oldest child same diagnosis uses less To have ability stripped stage limited ones from select providers trained specific needs someone turn around autism now gets XXX creates instability both require as well puts jobs constantly threat pushing people out work secure employment providing income depend upon hire independent support workers years experience thoroughly trained allied health If should registered they able full system taken find Without level of support may not remain at home Even though amendment says reduction always occur beginning new plan government can decide any which redacts reassurance current funding stable 1345 Each children individual deserve seen person group They deserves treated respected an without disability right meaningful growth education many forms this occurs choose own path Level based holistically and basis generic cap Without my son has would unable living cost much more family unstable everyone’s impact them extent Amending Access planning arrangements including defining functional capacity allowing sudden changes funds cutting social changing in our homes need registration limiting one size fits all will directly affect negatively worse off Kind regards