National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2325

deeply concerned about these changes.

Dear Sir/Madam,

I am emailing to oppose the changes to the NDIS scheme and to outline some of the impacts on my family. Amending Access and planning arrangements including by defining functional capacity will directly affect my family. For my family and to highlight the damage these changes will cause to my family. I am a single full time Mum; I have three children on the NDis. All three children require different supports, yet they have the same disability. Each NDIS plan is tailored specifically for each child and meets their needs to varying degrees. I have three children, all with high needs, I cannot in any way support all my children at the same time.

This submission is regarding the effect the proposed changes to NDIS will have on my youngest child, who is Autistic with a PDA profile, early childhood onset psychosis. He is on NDIS for autism and psychosocial disability. I self-manage all their core funding; Capacity Building is agency managed. Self-management has allowed me to get supports who directly have the knowledge, relationship, trust and skills to support my childrens growth.

The issues I am opposing are:

• Self-management, making sure my workers don’t have to register
• The 50% cut to social and community participation
• The functional capacity test and future reassessment of everyone
• The insecurity over plans, and plan funding
• Automated decisions and algorithms with no individual appeal

Schedule one

3 It can be impossible to define which section of a mind or body is affected by one specific disability in a person who has multiple. This raises severe concerns that supports will not be met due to the ambiguous of the ability to do this. This has already been shown in our recent plan assessment. We were denied supports required with their justification being they couldn’t independently state with evidence that the support need arose for one specific disability. This is impossible to evidence as each disability affects the entire person as a whole. Autism isn’t just three limbs and psychosis one limb, each affect the entire person, it is who they are, supports and are needed for the entire person. This new amendment will further enhance this problem. Due to this very problem my son had funding cut to his social and community participation. This has rendered him almost completely housebound. This has increased the effect of his disabilities, it has segregated him from the community, and his mental health is reducing.

4 Social and community supports My son has been deemed by the education department in writing to be unable to attend school or provide an education at home. Luckily I am a teacher myself and therefore ensuring he gets a great education. He requires high levels of support in most areas. The main areas being in-home support and in community support. Since NDIS started, he has progressed with these supports from being unable to enter the community at all, to regularly joining in the community. He now successfully participates in two social groups a week. This past term with the assistance of a Support Worker he has also been able to join in a homeschooling group and begun making friends his own age.

However, in his recent plan review he was reduced to 2 hours per week under capacity Building Increased Social and Community Participation to attend these groups. Then the added forced further seclusion of my son, NDis only provided two hours a fortnight for a support worker to support him to be able participate in these groups. And no transport funding. If the proposed changes of reducing this by a further 50% across the board comes in, my 12-year-old son will not be able to leave the house. He will become housebound. The work that we have done over the previous six years will regress with no progress.

Children at the age of 12 have the right and have the ability to enter their community and engage. My son has the same right, and requires support to be able. Without 1:1 support worker assistance, he cannot leave the house. Just before the beginning of his current plan, my son had begun earning some pocket money doing some basic odd jobs (for his level). He went with a support worker, and was supported the entire way through all the processes. He had to plan, advertise, converse, organise, complete, invoice and budget. What great initiative and real progress in capacity for a child. This then had to be dropped. If government impose the 50% cut, NDIS will be saying my son has the ability to enter the community for 1 hour each week (CB), to be supported for only half an hour per week (core), including travel on foot (no transport) there and back, at a need acknowledged to be 1:1 and that is adequate. If this was a person without a disability would we say that is sufficient or would we be saying that is abuse? All future thoughts of volunteering or working are diminished. The mental and psychological impacts of this on our entire family is and will be further devastating. This will not uphold the rights of people with disability, including to determine their own best interests, improving their ability to exercise choice and control or to simply allow growth and education to children.

NDIS personnel are by far not medically qualified to make the definitive answer as to whether all appropriate treatment has been trialled or needs to be trialled. Nor how effective each was. I would have serious concerns over NDis personnel deciding if my child has trialled every medication they feel may assist.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2325

child needed to be medicated to the extreme that he was on maximum dose of antipsychotics, he would be unable to function. NDIS changes, this can then be used that he can’t use any supports. In my sons case he will make no progress, and the progress he is making currently using social and community supports, Allied heath and social groups will no longer occur. He will be housebound. With supports to assist in the community he is increasing his capacity and having a successful, engaged, purposeful and contributing life

My son relies heavily on his supports to be able to function, he has made huge gains and progress with these supports, however my oldest child who has the same diagnosis uses much less support. To have the ability for supports to be stripped at any stage, or limited to ones who are from select providers less trained for our specific needs, or that someone can turn around and say autism level three now only gets XXX creates instability for both our family who require them, as well as our providers. This puts providers jobs constantly at threat pushing people out of work in favour of more secure employment, supports we are providing an income for, and the very ones we depend upon. We hire independent support workers who have had years of experience and been trained thoroughly in my son’s specific requirements by allied health. If these should need to be registered, they will no longer be able to work and we will lose our full support system. The supports have taken years to find. Without the level of support that we require my son may not be able to remain at home.

Even though the amendment says the reduction will always occur at the beginning of a new plan, the government can decide on a new plan at any stage, which redacts any reassurance that the current funding is stable.

1, 3, 4, 5 Each of my children are individual. They deserve to be seen as a person and not as a group. They deserve to be treated and respected the same as an individual without a disability. They have the right to a meaningful life, to growth, to education (in many of the forms this can occur), to choose their own path. The level of support should be based holistically and on a needs basis, ot a generic cap. Without the level of support my son has; he would not be able to remain living at home and would cost the government much more. Our family would be unstable, and everyone’s disability will impact them to an extreme extent.

Amending Access and planning arrangements including by defining functional capacity, allowing sudden changes to funding, cutting social funding, changing support workers in our homes to need registration, and limiting funds to a one size fits all, will directly affect my family negatively and we will be worse off.

Kind regards