National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2370
NDIS Senate Submission 2026
Submission regarding the National Disability Insurance Scheme Amendment (Securing the
disabled person’s name redacted: for future generations) Bill 2026 To the Senate Committee My name is disabled person’s name redacted`and I am the grandmother and primary carer of my 22 year old granddaughter who has been diagnosed with Autism L2. I am writing to express my deep concern regarding the proposed changes to the NDIS, particularly: • The intent to decrease funding for community participation • Removal of participants from which people mild moderate autism appear main target the removal appears to be • Message that people disability burden taxpayers. The initiative if ever gets off ground as early intervention Thriving Kids for granddaughter most likely enabled manage better teenager young adult decreased need later life. Without early intervention lived through childhood years being misunderstood severely bullied labelled lazy stupid difficult sensitive advise school diagnose something so they could receive extra education assistant not necessarily used her truth currently no help out there children. It wasn’t until she became mentally unwell refused attend at age referred mental health services clinician alerted us Autistic traits identified Mental do work autism little had Next step diagnosis cost $2500 daughter afford also needed worked ongoing issues came live me moved into CARE where care actually given further excluded next recommended assessed autism ultimately ASD level Generalised Anxiety Disorder PTSD Finally we answers granted NDIS based on her diagnosis Her access occupational therapists psychologists support workers improvements steady clearly identifiable anxiety disorder frequently co-morbidity ASD In granddaughters case rules day unable without support With NDIS funding learned cook clean generally look home found amazing registered provider finally fits others She has learned drive although still trying get licence been able attempt some opportunities with support Has gone away short stays achieved independence Supports movies coffee shopping portrayed media teaching survive world terrifies can talk shop assistants, do shopping buy a coffee without None of this would achievable without the NDIS.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2370
Her confidence is increasing and I can see a day when she will no longer need support. Her current goal is to leave home and live independently but she cannot achieve this without ongoing support.
The NDIS has been setting her up for success but I am terrified to think that AI will determine her next plan and if she becomes one of 160,000 to lose her funding all will be lost. She will regress without continued support and community participation funding and will go back to sitting in her room and quite frankly there are no other services available to her.
Saving the budget for the NDIS to look good on their spreadsheet will hit the many participants diagnosed with ‘mild to moderate’ autism. I can assure you there is nothing ‘mild to moderate’ in the level of disability experienced by this cohort of individuals. These people will end up flooding mental health and other health services that are already working beyond capacity. What is occurring here is simply cost shifting.
I implore you to relook at how well the NDIS does for hundreds of thousands of people and focus on ensuring strong oversight of service providers, investigating any rorts that are being identified, prosecuting these people and making examples of them.
Thank you for reading my submission